#Advocacy

Mesentery & Impact

Mesentery & Impact I have often been increasingly curious about the ties between excessive edema/swelling & its correlation to other inflammatory illnesses. Most of us understand the varying chronic physical symptoms associated around inflammation with arthritis, neuropathy, and other illnesses. […]

Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION

A Port -A -Cath Placement Through Pocket Insertion A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life […]

Rare Disease Day 2/28/2019

Seeking cures is a journey. Life is filled with lessons. We are not liabilities nor disabilities, but beautiful works of art reflecting each other’s lives upon this brief canvas. If I see you, you hear me, we feel each other, […]

Creating A Peaceful Atmosphere

Creating a Peaceful Atmosphere can be done in a lot of ways. I believe we (Warriors) do so, in a multitude of ways to cope on our chronic journey. We are all human beings, none the same, all beautiful, each […]

Adversities

#FactFriday #Green4GP #CureGP #Gastroparesis #Motility Digestive Disease #chronicintestinalpseudoobstruction #CIP #ColonicInertia #Mito #CureMito #Diabetes #Cures #AutoImmuneDiseases #EDS #POTS #ulcerativecolitis #Crohns #Sjogrens #Lupus #Raynauds #Barretts #TisTheSeason4Cures #Love #Peace #Joy towards comfort and strength through advocacy for research, treatments, quality of life and […]

‘‘Tis The Season of Cures”

‘It’s the season of cures Alas, how can this be? This phrase, meme, hashtag, has been posted, shared, advocated by deeply committed chronic communities over a great span of their shared chronic journeys. I believe, it is in part, because […]

Second Place – What It Could Mean

Stand tall All is not lost There will be a record keeping All is kept in its place A close second is not an embarrassment to our tomorrow It is a marker for Justice She will come Ever so slow, […]

Charity /Advocate Who We Are

#ShareASpoonSaturday We are patient and kind while sending our virtual spoons out to each other worldwide. Millions with incurable illnesses living with chronic illnesses. Lifting each other up in charity. Charity is never selfish, haughty or rude. We live each […]

Our World Today

I feel at a loss, not as a chronic warrior of incurable illnesses, nor with my advocacy over adversity from day to day in prayer to keep my mind and thoughts in a peaceful strength of optimism and positivity. No, […]

Seeking Healing & Control While Chronic

Seeking healing, and control while striving to find answers to the why …. a body is spiraling out of control physically from an undiscovered illness. This can be a devastating experience without support both family, medical, and spiritual of some […]