How Does This Help? We are limited during #SocialDistancing & #StayAtHome, BUT… WE — YOU— Me—US Have been magnificent! #TogetherAtHome has helped our humanity —all of us together!!! Worldwide- we mourn all loss of life & lift our fellow warriors fighting now to stay alive.… Read More »Social Distancing
The Silence We Speak The humanity of us all It isn’t inanimate Nor is it invisible We are one nation/ one world/ one for all- all for one The silence we speak or silently never at all as zero and beyond Is the loudest of… Read More »The Silence We Speak
Time Is True We have now the truth of us the joy of our mystery lives inside each of us we beseech all to be true Not so much- roses are red, violets are blue Kind of poetry, not this. time is true purges all… Read More »Time is True
#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold variables. There is no guilt,… Read More »#ChronicTime #ChronicClock
Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD
A Port -A -Cath Placement Through Pocket Insertion A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life and care thrive vs failure… Read More »Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION
Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues and their root causes &… Read More »Jan 11, #2020Motility
https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic illnesses layer over each other… Read More »Thankful Thursday -Advocacy Options
#2020 #Motility #GP #Cures Speak your truth, chronicle your chronic journey, empowering yourself & others towards research & treatments regardless of our level of paralysis, symptoms, response to available treatments. We all deserve a quality of life & care while seeking cures for our chronic… Read More »#2020Motility Cures
Speaking of 2020 Reflecting on 2019- not bypassing our present moment, but anticipating our humanity in our truth through prayer. Do you seek guidance beyond self? If so, what interpretation does 2020 give to you? As I look at the numerical single meaning of 2+0+2+0… Read More »Speaking of 2020
