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#HR2311

#RightCare #RCAW 2016

Happy #CureGP www.curegp.com FB.curegp.com #HR2311 https://buildquorum.com/actions/1996 #TakeABite4GP http://fb.takeabite4gp.org http://www.takeabite4gp.org  #RightCare = ___ #RCAW. #ThankfulThursday 🕯💚🙏🏼💛🕯 Why #ThankfulThursday it follows #WarriorWednesday Every #NEGU #ButYouDontLookSick #Spoonie #InvisibleNoMore knows each hour is filled with thanks for an #OpportunityInTheCrisis even whilst dealing with the harsh waves of pain, fatigue,nausea,… Read More »#RightCare #RCAW 2016

Agree to Disagree

Life is too short too precious  To not slow your roll & do otherwise.  I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my monkey not my circus. I… Read More »Agree to Disagree

Priceless-You Are

Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you see outside your window and… Read More »Priceless-You Are

I Find AWay

Ill find a way  Everyday I will see your good & the peace in you Because in me I hold peace, patience, optimism, & the bridge with Love I will find a way everyday to see unity because the alternative is too heavy  Therefore if… Read More »I Find AWay

Have you been on the other end?  Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss of  – pounds!”  Have been… Read More »

#IIWK16

#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16

Be Visible

My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service  Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible

#InvisibleNoMore

Here are some links to our multi-level issues faced by – not all- but so many of us!  #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO  #InvisibleIllness —  this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore

Do You See?

Do You see? My invisibility  The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight  The chronic intestinal pseudo-Obstruction Syndrome #CIPO  DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?

A Doctor Interview

Doctor are you worthy? We are priceless. What is your protocol for a multilevel situation (either you know or in the process of knowing) Dr are you able to reach out to specialists? Do you know a good palliative care team to support my various… Read More »A Doctor Interview