I fight everyday and I will never stop!
I will be the best I can be and I desperately try to reflect the okay I say without hesitation!
With that said, I am going to write a slightly different writing today.
I have spent a huge portion of July in the hospital because of Gastroparesis, chronic intestinal pseudo obstruction syndrome and colon inertia with mitochondrial malabsorption. When I had a small bowl obstruction on July 4 th then surgery on the 7th and was discharged on the 24 th – I was then re admitted on August the 14 with small bowel obstruction after a Ct scan. I was put in ICU then moved onto the floor and a small bowel barium follow through was done where it it took approx 24hrs to complete then for days it just stopped at the pelvic area and finally broke-up. I was discharged on the 23rd. During this stay one of the Drs consulting asked me (who had lost a best friend a year ago – due to complications of Gastroparesis ) if I understood what I have in this severe form could be terminal? And that I had beat odds? He meant this as encouragement.I of course responded calmly,yes I understood this. I am not upset I was asked and I even hesitate to write about this experience, but I do because as I reflect it is appalling that there is this level of understanding in areas of the medical community! Yet, we are fighting, and pleading in every social media avenue available to us to acquire signatures for petitions and a Bill to help find a cure for this torturous invisible disease.