Skip to content

In 15 days Advocacy is Getting Louder!!!

There is a great moment about to occur in 15 days the green AWARENESS IN THE AIR which has already been ignited by the heroes in the #GPChronicSuperFabulosityWarriors . We began Gastroparesis/Motility Disorder Awareness Month/Week/Day on August 1,2017 WE HAVE 33 State Proclamations and counting – did you hear me right? 33 STATE PROCLAMATIONS and counting…
yes “We are smelling the roses and not feeling the thorns” ….Abraham Lincoln

When many of us began our journey– for myself? It was a diagnosis in 1999 but symptoms preceded this diagnosis for years/ plus it was a two-part diagnosis. I began with Idiopathic Motility Disorder/Part 2 brought AutoImmune and Mito by way of an explanation: Like many of you? I innately knew there were hereditary links to this puzzle which had been coming together for years.
Because this is Awareness Month…
I want to do a simplified version of this Gastroparesis Fighting For a Change and advocate for those who need words to explain. We, as a community, usually fall into two Categories – Diabetic Gastroparesis or Idiopathic Gastroparesis.
There are some of us who have a family which seems to have diabetes passed down through their family like heart disease can run in the family? I know you have all answered these questions in your doctor’s office with the papers questioning you on your mother’s side and on your father’s side about diabetes, heart, cancer, etc.
The idiopathic side of Gastroparesis has been defined for some of us over the years whether it be, a surgery which cut the vagus nerve, or perhaps an infection or like me, it may be another route, like —> mitochondrial Malabsorption which as a result of the mitochondrial Malabsorption disease led to all of the issues I have Gastroparesis, Chronic Intestinal pseudo-Obstruction Syndrome, Colonic Inertia, Postural orthostatic tachycardia syndrome (POTS) (is a condition in which a change from lying to standing causes an abnormally large increase in heart rate) & Chronic Abdominal migraines.
There are other diseases/disorders or issues which can lead to or cause Gastroparesis and then the complications resulting from repetitive dehydration and malnutrition on your organs can lead to a failure to thrive and/or a loss of life linked to the stress on your organs.
Two years ago if someone had asked you or me if there was a part of the digestive tract hiding in plain sight? I would have said, “No!” You would have
said, “No!” And we both would have been wrong and right… see when the Mesentery was discovered as a part of the digestive system it was a very big deal!

The mesentery is a fold of membrane that attaches the intestine to the abdominal wall and holds it in place. Mesenteric lymphadenitis is an inflammation of the lymph nodes in the mesentery.

See the issue is, there are some of the motility disorders /digestive diseases/ or whatever way is the way you choose to express your journey. Which in itself an issue. Please hear me well your truth, diagnosis, and symptoms are what they are and it is not a test where there is a right or wrong answer.
However you choose to express yourself is well done! You are a beautiful person and the best you/you can be on this day! In fact no one, no one can tell your story better than you!!! You are the #GPChronicFabulosityWarriorReporter of the day!!!!

I hope you feel the encouragement, love, support, and positivity with optimism flying all about you! It is building Day -hour-minute- second upon second— please hear — if you are able to post a sticky note with a #Green4GP To #CureGP on August 17 you are #TheEvent and have joined hands with the millions anything you do that adds to this? Like light your driveway— subdivision- hospital— city street— park– #Green4GP — #BeSeenBeingGreenforGP is complete and utter extra awesomeness ****** 🙂 🙂 🙂

On a side note:
When you get to a great Motility Specialist the “background questions” will be very thorough on both of the maternal and paternal side. It is very helpful if you have someone who knows your family medical history back a couple of generations.