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  • Debbie 

Peace & Comfort for Chronic -Communities-Warriors

While each of us regains strength from different places/sources, if you are on a chronic journey, seek out that source. Regardless if in prayer, meditation, taking supplements or prescriptions to address varying symptoms or chronic illness. Do all of the aforementioned or a mixture or none of the above whichever way you choose. I speak as a fellow warrior with unconditional support and unconditional love and empathetic compassionate caring in advocacy.

Yes, I do believe, but I do not come to convert anyone only to speak in truth.

Strength is increased by positivity, joy, laughter, reinforcement of all of these continually. While the deep satisfaction of factual real world knowledge (Lord, how hard that is these days!) currents events is a running conversation. The millions worldwide with chronic illnesses were joined in March of 2020 into a conversation which had been going on for many chronic warriors. The endless- infinite ♾ accounting of chronic warriors whose voices began the support groups on Facebook, Yahoo, My Space or in even further ancient history once a month in person support groups. There are even still phone call support groups being held. Yes, there are even offline support groups being done…sorry this is sarcasm. Yes, most likely a group of cavewomen met secretly, wrote in sand and never left the evidence of their communications. Yet, I do not think there was any great need for motility digestive tract issues until we developed transportation and processed foods. The combination of farm chemicals, antibiotics, growth stimulants in meat processing plants, with water quality combined is at the generational accumulated mixture of chronic illnesses. If we combine one or more mitochondrial malabsorption, + autoimmune disease issues into a petri dish of possible other problems. Oops, sorry I digressed into digestive tract issues, back onto topic.

Telehealth developed into a conversation long overdue because of the coronavirus. The term “long-haulers” has now been added to preexisting conditions without any clarity due to the lack research for a new virus.

What never changes is the need for research, treatments, quality of life and care while seeking cures chronic illnesses. Regardless of varying degrees or diagnoses the need for data and its silos into national data base to create better choices and quality of life always is required. The moonshot for cancer research created priceless information and treatments moving us closer towards cures.

The “gutshot ” or whatever other title it doesn’t matter the title, it is the research, treatments and data towards results for cures. We can do this together to end motility digestive tract issues.

Sharing what gives me strength. The source of comfort and strength.

The music 🎶- one example -among many

Since I was a very young child this song was the essence of peace.

“In the Garden” This version is by the Church Sisters Whichever artist you choose to hear the hymn is up to you. I will show my age by stating Elvis and Dolly Pardon, as I said finding any artist in any century, decade well known or not isn’t relevant. It only matters if you are healed, inspired, motivated, and/or empowered moment by moment.

Yet I could give you example of “Tennessee Whisky” which might be thought of as a disqualification, but again I give facts, not conversion.

Then for a little more musical inspiration

“Say Something” done by Justin Timberlake and Chris Stapleton

So very timely- the very definition of Peace Be Still … at least my interpretation.

“Our greatest strength is saying nothing at all” #PeaceBeStill isn’t inaction it is wisdom.

We vote on November 3rd 2020

No one should tell you how to vote or whom, but everyone should vote!

We should all advocate for ourselves and others especially when we feel at lowest point or in our fewest of spoons. In our chronic journey even our smallest of acts matter greatly.

We do not measure ourselves by the actions of others but by the truth of how much we accomplished with our own allotment. Once our personal balance sheet has been evaluated in those quick seconds, then a deep peace of comfort and strength ascends. This is the peace that passeth all understanding.

The Prayer of St Francis

“And Joshua said unto all the people [of Israel], … choose you this day whom ye will serve; … but as for me and my house, we will serve the Lord” (Josh. 24:2, 15).

A suggestion for meditation and an aid to clear your mind.

Find a visual which is both calming and peaceful to you. Hold this in your mind while controlling your breathing slowing breathing in 19 seconds and out 19 seconds. Continue to do this until you feel your heart rate slows and body relaxes.

If in the middle of the night you should awake, try this exercise. The exercise is to silently sing the simple nursery rhyme “Row row row your boat gently down the stream. Merrily Merrily, merrily life is but a dream.” Repeat this silently, even overlay it with two at a time – all silently- whilst holding your visual and calming breaths. Soon you should find yourself asleep again. It often works. It is wort the attempt versus a long sleepless night.

Biofeedback is very helpful as I written about before. It is so very helpful with migraines and overall pain involved with chronic multiple illnesses. I am not saying it stops all pain! No! I am not saying this at all. I am saying it is another tool in ou4 quality of life and care while seeking cures for our chronic communities. It is a priceless tool! I have used in conjunction with my prescriptions many a night. It, prayer, meditation, and a husband who – Thank you Jesus- knows I cannot move when these days happen. He brings ice packs, he empties the vomit from old Country Crockett butter container. It is this kind of migraine and abdominal pain which isn’t unknown to a lot of the motility digestive communities. What is terribly hard to know is the number of chronic community warriors without support to help them on those days they cannot help themselves. A lot of them cannot hold down jobs, obviously. They can’t reliably participate everyday in their own lives. We have come a very long way since the early days of gastroparesis and motility digestive tract issues. We don’t have teach every hospital, like we used to have to do every single time we came into contact with the medical community. We unfortunately still have family members who do not understand our lives. They don’t understand why we try to eat when we are starving. Even though it may hurt or harm our broken guts. They just say “see you can eat, when you want to eat!”

If only a stop …to think, you can put anything into a car too molasses, diesel, or anything else.

If the car is broken it won’t work.

The difference is a car can easily be fixed, usually.

Human beings cannot easily “be fixed.”

A phrase I have often heard, “I sure hope they can fix her.” Whatever the pronoun it is still applicable.

Whatever the diagnosis/diagnoses or varying symptoms or response/es or lack of responses to the proposed protocol. It is a protocol of keeping hydrated and a quality of life. It is the most successful treatment while seeking a cure. I am extremely blessed by IV antiemetics which hold back nausea and vomiting with hydration fluids to keep hydration. I am very blessed to have had a surgeon who understood how create pocket for my 8th portacath under the pectoral muscle. I pray every day for its continual usage and functionality. It is truly a life lifeline. I pray for every chronic warrior in their varying degrees of diagnoses or on their seeking for answers towards a diagnosis/es to the varying degrees of symptoms or response/s or lack thereof may all find their best quality of life and care while seeking cures for our chronic communities.

We all hope everyone with incurable illnesses will attain research, treatments, quality of life and care while seeking cures for our chronic communities.

Action in advocacy over adversity has the energy to do the most good

Action together for us all!

#HR3396 H.R. 3396  – Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019

There are other pieces of legislation needing cosponsors or action such as this please, on behalf of all chronic communities and yourselves and all humanity – when energy /spoons allow advocate over adversity. It increases comfort and strength to bring awareness lighting our chronic journey with knowledge truly empowers a special strength of serving purpose higher than ourselves with action one cog at a time, moment by moment. All issues have colors like Gastroparesis- green, mitochondrial- green – POTS – turquoise- etc as each illness has its own color advocates with multiple diagnoses become a small rainbow – advocacy over adversity …a visual example of multiple inspiration for all of us! Like music, poetry, or painting we cannot expand upon my personal interpretation of the meaning of the rainbow it would place limits or guide others to see or believe as I do. Therefore I will leave the rainbow as it is, an inspiration. I pray, think, and have written the facts as I know them to be any mistakes may be attributed to me as well.

As often with my writing these days it takes a little while to complete.

It is now 10 am Sunday Nov 1, 2020

We are very close to the time to vote for any who have not yet voted. If you live in a state which has always “gone blue or red” and are wondering what possible difference could my vote make? Well, it does and always will! We all vote on state issues, they are usually printed on by state paper, local news station etc Every voter is able to see or hear their state’s amendments issues prior to Nov 3rd. Be informed and make a plan to when you are going to cast your vote. Then on the “blue or red” making your vote count and your voice heard ALWAYS ALWAYS matter! Our democracy has been a very long road. We absolutely should vote or never complain about a single thing at all- at all- !!!

As I stated once before we each contribute to our society- even if you have gone off grid completely- living off the land- somehow inherited land- able to tool your weapons – create your own neccessities- learned how to create fire without any need of purchasing anything- ……the requirement of good clean water and air to breathe. This one factor along with the weather isn’t something anyone can predict nor can anyone predict how their health will be from moment to moment. Does this life off the grid become a hermit? These are just a few questions you might ponder, when deciding if your vote matters. Because I believe the early settlers got together and decided life was easier when they worked together and shared their talents. Yet, if they could go back do history over again, which we can’t, but they I bet they sure wish they could choose to not deal the Native Americans so wrongly. History can’t be rewritten, but the harsh lessons come from so many sources. Which is why the constitutional amendments on voting was —>>>

The constitution with its amendments is absolutely required need to reflect the amendment acknowledging the rights to vote for both

Passed by Congress on January 31, 1865, and ratified on December 6, 1865, the 13th amendment abolished slavery

The 19th Amendment to the U.S. Constitution granted American women the right to vote, a right known as women’s suffrage, and was ratified on August 18, 1920, ending almost a century of protest. ..

The Fifteenth Amendment (Amendment XV) to the United States Constitution prohibits the federal government and each state from denying a citizen the right to vote based on that citizen’s “race, color, or previous condition of servitude.” It was ratified on February 3, 1870,as the third and last of the Reconstruction Amendments.

On this date in 1962, the House passed the 24th Amendment, outlawing the poll tax as a voting requirement in federal elections, by a vote of 295 to 86. At the time, five states maintained poll taxes which disproportionately affected African-American voters: Virginia, Alabama, Mississippi, Arkansas, and Texas.

The Declaration of Independence

We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable rights, that among these are life, liberty, and the pursuit of happiness. That, to secure these rights, governments are instituted among men, deriving their just powers from the consent of the governed. That, whenever any form of government becomes destructive of these ends, it is the right of the people to alter or to abolish it, and to institute new government, laying its foundation on such principles, and organizing its powers in such form, as to them shall seem most likely to effect their safety and happiness.