Rare Disease

Creating A Peaceful Atmosphere

Creating a Peaceful Atmosphere can be done in a lot of ways. I believe we (Warriors) do so, in a multitude of ways to cope on our chronic journey. We are all human beings, none the same, all beautiful, each […]

#ShareASpoonSaturday with #MuchNess

“Forgetting is just forgetting, except when it’s not. Then they call it something else.” The Mad Hatter When we see the miracles, wisdom, strength, Joy, Peace, Faith, Gentleness, Patience, Love, Kindness, Self-Control, Goodness of His Spirit meeting us in our […]

Being Rare #WorldWide

I stumbled upon this looking for something else.. I am in the midst of reading & evaluation I take a bit with #GPFog. Patience -please. ^^^ Thank you. https://ojrd.biomedcentral.com/articles/10.1186/s13023-017-0618-0 thought y’all might find it interesting as well.

You Are Always Here ~ As Am I

These are two things I know! When YOU are close? Everything  will be okay!  Are you thinking this life is too hard, too painful, too undignified, or not a life at all? Is this what you say?  In the darkness, […]