The United Mitochondrial Disease Foundation Does a great job of educating, empowering, and advocating for people about mitochondrial diseases. They also do a lot work, among others, in trying to help change the mitochondrial atmosphere for patients, supporters, and physicians. Many patients are in the… Read More »The United Mitochondrial Disease Foundation/IFFGD/Advocacy
#HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener in Twitter while advocating on… Read More »#AdvocacyDay 9/12/2017
What speaks to my Soul might not speak to your Soul. I pray you find GRACE, OPTIMISM, SUPPORT, LOVE, HOPE, & the tiniest spark of ENCOURAGEMENT which may be needed to lift you in your moment of travail, anxiety, stress, doubt, pain, depression, chronic illnesses… Read More »May We Find & Meet
I’m Nobody! Who are you? Emily Dickinson, 1830 – 1886 I’m Nobody! Who are you? Are you – Nobody – too? Then there’s a pair of us! Don’t tell! they’d advertise – you know! How dreary – to be – Somebody! How public – like a Frog – To tell one’s name – the livelong June – To an admiring Bog!… Read More »We Are The Cogs
As I watch Biographies,documentaries, and movies with content about “our nature” throughout time immemorial with this issue called “racism, prejudice, misogyny, bigotry, hate, discrimination, etc.. and while I say “our” it is not all of “our” many, some, chosen have made their historic voices heard… Read More »A Thought On Our Nature
#ThankfulThursday on the #CureGP journey #Gastroparesis a #Mitochondrial #MotilityDisorder Awareness #Advocacy #TBT selfie testimony When we say #ButYouDontLookSick sometimes in our journey this phrase screams and sometimes it whispers… the first photo the symptoms were creeping but that young woman who was about to step… Read More »#ThankfulThursday 8/31/2017
Your body just keeps surprising you with its Motility Disorders & AutoImmune Disorders Why Awareness is Paramount. About a year ago an allergic reaction shifted into an EpiPen required response due to an unexpected visit to the ER anaphylactic reaction to an unknown source. I… Read More »We Would Like A Vote…
As I sit & contemplate how to best make an impact as an advocate for the #CureGP journey empower myself & others by being a #GPReporter in our larger #Chronic Community…. I see the trending topics on Twitter and then see a prompt to drop… Read More »Motility & Co
Where is your best step in an uncertain world? Let’s just walk through this maize together. You either have been living with “incurable” since you were very young or are suddenly a collection of symptoms begin raining down upon you. Yes, this is an over… Read More »Being Chronic
My blog this #SoulfulSunday with advocacy of #MotilityDisorders is more of a flow chart of thoughts for what I want for our community I am using Dr Thomas Abell’s information from the University of Louisvile Ky & their Motilty Clinic as a blueprint guide to… Read More »Soulful Grace +3
