I keep a “Bible of Me” typed out – which I need to print out for a clean version. It is approximately 5 pages long. Why? I do this to keep a mental healthy me. A simple and lighter version of me, while I fight… Read More »Foundation of Me
My Gastroparesis/MotilityDisorder/ #POTS #CIPO Colon Inertia #Migraine- Mitochondrial-Malabsorption Journey While keeping an #IamOkayNow Attitude with Advocacy The beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was a reaction to Indocin. I… Read More »My Gastroparesis Journey 10/16/2017
#CUREGPADVOCACYTHOUGHTS #GPinSync4ACure Happy #ShareAStorySaturday on this #CureGP journey as we begin to put our summer to bed, let me share a part of my story. Y’all cannot be on my page long without knowing my story includes The Great Smoky Mountains. As I went to… Read More »#ShareAStorySaturday #GPVoguePhotoShoot
How being in a #PeaceBoat works for Chronic Illness – > On a journey of invisible, incurable illness seeking cures, we change, some good, some different, than anticipated, some not, but we change in our crisis from the bending of the opportunity. How did the… Read More »#Chronically #PeacefullyHopeful
New Treatment Trials /Procedures for Gastroparesis /Motility Digestive Disease Disorders I think it is always helpful to add information and explanation Peroral Endoscopic Myotomy (POEM) | Johns Hopkins Division of Gastroenterology and Hepatology http://www.hopkinsmedicine.org/gastroenterology_hepatology/clinical_services/advanced_endoscopy/peroral_endoscopic_myotomy.html Early human experience with Per-Oral Endoscopic Pyloromyotomy (POP). – SAGES Abstract… Read More »New Procedures/GP
http://goo.gl/Do2iui All things are possible. A thought is an idea waiting to become a reality upon meeting a knowledgeable optimistic person whose paradigms are not defined but beautifully blurred with positivity. dst 8/16/17 It is great connecting with others who know their thoughts and actions… Read More »#WarriorsDazzle
Prayer Meditate (Reservoir empty beep beep beep— enter to reset volume) Some know – some empathize – some are our Warriors in arm in arm! Who know of which we speak,,, the best kind when the energy levels go to -5 (yes a negative 5)… Read More »Thank you, Warriors
Happy #TubieTPNTuesday !! 2/7/2017 We celebrate you being you, we also #Advocate lift all #Spoonies!! No you are not defined by your diagnosis! Yet we #Overcome the reality & shift paradigms with a focus driven by optimism, positivity, & Empathy with Grace increasing serotonin (FROM—->>WIKIPEDIA-… Read More »#TubieTPNTuesday
May I share with you a deep truth today? It may not be well said, but it is heartfelt. We are a community heartbroken by loss with two (another I saw added late in the day by another sister in the community known through their… Read More »May We? Speak?
Why do you think Gastroparesis seems more prevalent in women than men? Well I could get into a physiological explanation of my opinion–> without a doctor’s degree, training, or knowledge. I could suggest the hormonal imbalances, ovarian cysts rupturing, structure of our bodies create a… Read More »Can You?GP
