#spoonie

Focus

Sometimes we have to use our energy/spoons to focus on healing ourselves. In a migraine, it takes every single bit of energy I have to focus on my biofeedback training. I slow my breathing, then my heartbeat, heart rate, and […]

Hat Therapy on #CureGP #SpoonieSunday

Hat Therapy on The #CureGP Journey w/ #Gastroparesis a #DigestiveDisease #ChronicWarriors use many methods to uplift our spirits – We are NOT our diagnosis. 🙂 WE ARE our unique Beautiful. Courageous, Advocators, #GPReporters, seeing ourselves as cogs in a big […]

#CureGP Gastroparesis in 2018 Research

As I sit and contemplate our current state of #GPReporting on this #2By2 journey of #Advocacy in change for #CureGP #Gastroparesis We will take our #TagUs #ModusOperandi to create #Invisible2Visible #Incurable2Curable w/ our #Worldwide #TakeABite4GP in Empathy. #TakeABite4GP our #WorldWide […]

Gastroparesis Positive Thinking – Not Oz

The road to positive thinking is not like Dorothy on the road to Oz. No, it is entirely different. It is not “click our ruby-red heels three times” say the well-known words. The chronic warrior must be mindful, diligent, with […]

A Thought On Our Nature

As I watch Biographies,documentaries, and movies with content about “our nature” throughout time immemorial with this issue called “racism, prejudice, misogyny, bigotry, hate, discrimination, etc.. and while I say “our” it is not all of “our” many, some, chosen have […]

A #FactFriday #BeSeenBeingGreen4GP

Happy #Green4GP to #CureGP #TheEvent http://goo.gl/Do2iui #FactFriday y’all are amazing #warriors “supercalifragilisticexpialidocious” You know the phrase is legendary and so are y’all! #Patient_Advocates taking confusion, adversity, no’s, dead ends negative thoughts, pessimism and turning it all to the greater good […]

Being Chronic

Where is your best step in an uncertain world? Let’s just walk through this maize together. You either have been living with “incurable” since you were very young or are suddenly a collection of symptoms begin raining down upon you. […]

#2016Holidays

Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you […]

#IVoted & #CIP Sat🕯Down

#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have […]

What I Was Taught.

My Warrior voice says, thank you,  Why? Because you taught me I have no control.  What a strange thing to say, thank you to, right?  But all of the loss taught me my minimal win was the most important & […]