colonic inertia

Advocacy in Action

Sometimes just creating a different kind of energy for an uplifting moment helps us/me past a chronic experience. Even if it isn’t ever seen or used on a platform.it served its higher purpose from within me. The energy aka spoons […]

A Minuet

A Minuet Within our grasp we hold a tiny bit of breath In each of our lives there are choices we take and choices we make We dance a slow minuet of grace of these breathes we take. A demitasse […]

Actionable Advocacy our Authentic Voice

A chronic journey advocate who, like many of you, found this pandemic an empathetic challenge. While at the same time an opportunity to become stronger spiritually, mentally, emotionally, and chronically through introspection. It doesn’t happen overnight, ever! Chronic warriors who […]

#AdvocacyDay 9/12/2017

#HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener […]

May We? Speak?

May I share with you a deep truth today? It may not be well said, but it is heartfelt. We are a community heartbroken by loss with two (another I saw added late in the day by another sister in […]

#AllOfMe 

Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a  million I wouldn’t know but what I do you know, all of […]

It’s So Real

While we have become a culture which greatly enjoys reality show formats. We as well like viral videos. We have a short attention span because we  live very busy lives! But there is something happening which is larger than any […]