• #CureGP
  • #AdvocacyDay 9/12/2017

    #HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener in Twitter while advocating on the #CureGP journey. The google shortener allows you to say […]

  • #CureGP
  • Being Rare #WorldWide

    I stumbled upon this looking for something else.. I am in the midst of reading & evaluation I take a bit with #GPFog. Patience -please. ^^^ Thank you. https://ojrd.biomedcentral.com/articles/10.1186/s13023-017-0618-0 thought y’all might find it interesting as well.

  • #CureGP
  • #GP_Osteoporosis

    Gastroparesis and Osteoporosis from the https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2950667/ site While I am contemplating #WarriorWednesday and what I can best do to help /advocate in our community in & out. I can still feel the day, as I was returning from town (we live outside city limits)checking the mailbox, I opened a VERY urgent letter about my bone […]

  • #CureGP
  • 54th & Main Agape 

    I found you on the corner of 54th & Main.  There is no shame in our name nor our game!  We are “Bossed up!” There is no “game!” We have #NoBuckets! Only Flames – So bright like the sun – you beta’ be careful or your eyes may be singed by our brilliance!  We are […]

  • #CureGP
  • May We? Speak?

    May I share with you a deep truth today? It may not be well said, but it is heartfelt. We are a community heartbroken by loss with two (another I saw added late in the day by another sister in the community known through their mutual doctor visits) gone from life both young in age […]

  • Advocacy
  • #AllOfMe 

    Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a  million I wouldn’t know but what I do you know, all of you are with all of me. #GPNation meaning gastroparesis a motility disorder. In the United […]

  • Thoughts
  • It’s So Real

    While we have become a culture which greatly enjoys reality show formats. We as well like viral videos. We have a short attention span because we  live very busy lives! But there is something happening which is larger than any reality show! It is beyond being viral! It is deserving of your very precious time! […]

  • Thoughts
  • What It Is Like

    I wish for just one second and only for just that one second you could feel the hunger inside my body! See, you look at me quietly laughing and trying to praticipate in this family gathering or a friendly outing. And sometimes there are looks at the lack of food on my plate, oh I […]