#POTS

Advocacy in Action

Sometimes just creating a different kind of energy for an uplifting moment helps us/me past a chronic experience. Even if it isn’t ever seen or used on a platform.it served its higher purpose from within me. The energy aka spoons […]

A Minuet

A Minuet Within our grasp we hold a tiny bit of breath In each of our lives there are choices we take and choices we make We dance a slow minuet of grace of these breathes we take. A demitasse […]

Actionable Advocacy our Authentic Voice

A chronic journey advocate who, like many of you, found this pandemic an empathetic challenge. While at the same time an opportunity to become stronger spiritually, mentally, emotionally, and chronically through introspection. It doesn’t happen overnight, ever! Chronic warriors who […]

Our Digestive Tract Motility Scanner

Our Digestive Tract Motility Scanner A beautiful addition to a prayer I have been speaking aloud physically and spiritually since approximately 2005-2006 Dr Thomas Abell would do an EGG 1)EGG An electrogastrogram (EGG) is a graphic produced by an electrogastrograph, […]

Mesentery & Impact

Mesentery & Impact I have often been increasingly curious about the ties between excessive edema/swelling & its correlation to other inflammatory illnesses. Most of us understand the varying chronic physical symptoms associated around inflammation with arthritis, neuropathy, and other illnesses. […]

Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION

A Port -A -Cath Placement Through Pocket Insertion A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life […]

Adversities

#FactFriday #Green4GP #CureGP #Gastroparesis #Motility Digestive Disease #chronicintestinalpseudoobstruction #CIP #ColonicInertia #Mito #CureMito #Diabetes #Cures #AutoImmuneDiseases #EDS #POTS #ulcerativecolitis #Crohns #Sjogrens #Lupus #Raynauds #Barretts #TisTheSeason4Cures #Love #Peace #Joy towards comfort and strength through advocacy for research, treatments, quality of life and […]

‘‘Tis The Season of Cures”

‘It’s the season of cures Alas, how can this be? This phrase, meme, hashtag, has been posted, shared, advocated by deeply committed chronic communities over a great span of their shared chronic journeys. I believe, it is in part, because […]

Second Place – What It Could Mean

Stand tall All is not lost There will be a record keeping All is kept in its place A close second is not an embarrassment to our tomorrow It is a marker for Justice She will come Ever so slow, […]

Charity /Advocate Who We Are

#ShareASpoonSaturday We are patient and kind while sending our virtual spoons out to each other worldwide. Millions with incurable illnesses living with chronic illnesses. Lifting each other up in charity. Charity is never selfish, haughty or rude. We live each […]