The United Mitochondrial Disease Foundation Does a great job of educating, empowering, and advocating for people about mitochondrial diseases. They also do a lot work, among others, in trying to help change the mitochondrial atmosphere for patients, supporters, and physicians. Many patients are in the… Read More »The United Mitochondrial Disease Foundation/IFFGD/Advocacy
Chronic Warriors/Advocates/ #GPReporters – How We Approach Advocacy How can we advocate with our numerous chronic illnesses, lift our communities by sharing our journey while speaking our truth with a positive voice and an uplifting message? We are, in many ways, ambassadors of chronic. We… Read More »How We Advocate
BEHOLD Please, see with me the most brilliant group of technicolor/s you have ever yet to see. Next, please inhale with me the most heavenly of scents you have yet to smell. Now, carefully mute all of your devices, put in your headphones, buds, whatever… Read More »Behold
My Steps Are In Accord With Prayers/the Universe What do I mean? I would like you to picture a walkway say 100 yards long. The length of a football field. It is approximately 3 feet wide. When the river is down you can see cracked… Read More »My Steps Are In Accord
Hat Therapy on The #CureGP Journey w/ #Gastroparesis a #DigestiveDisease #ChronicWarriors use many methods to uplift our spirits – We are NOT our diagnosis. 🙂 WE ARE our unique Beautiful. Courageous, Advocators, #GPReporters, seeing ourselves as cogs in a big wheel of advocacy. Yet, we… Read More »Hat Therapy on #CureGP #SpoonieSunday
As I sit and contemplate our current state of #GPReporting on this #2By2 journey of #Advocacy in change for #CureGP #Gastroparesis We will take our #TagUs #ModusOperandi to create #Invisible2Visible #Incurable2Curable w/ our #Worldwide #TakeABite4GP in Empathy. #TakeABite4GP our #WorldWide #Empathetic Campaign. If you can… Read More »#CureGP Gastroparesis in 2018 Research
As we begin to proceed into a brand new shiny new year… I wonder how our community the #ChronicWarriors #GPReporters will look at our new year? I do this numerology thing of arriving at a single digit for a day of a year…. 2018 is… Read More »1-1-2018
The burden and the bear We sometimes know not what to wear, the clothes seem to hide what is not shown. A burden is not inside. What we must hide? The place that came about one day from inside? We were hunting and being the… Read More »The Bear and The Burden
The road to positive thinking is not like Dorothy on the road to Oz. No, it is entirely different. It is not “click our ruby-red heels three times” say the well-known words. The chronic warrior must be mindful, diligent, with practice, prayerful/meditatively/biofeedback/counseling/therapy a layering of… Read More »Gastroparesis Positive Thinking – Not Oz
I want to be a JOYFUL COG! I love the message of this writing! I was looking for the scriptures with “cog” much to my surprise it was not there! So I had to reference another place for context beyond my own head. 🙂 There… Read More »#Cog 2017
