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#EDS

#TubieTPNTuesday

Happy #TubieTPNTuesday !! 2/7/2017   We celebrate you being you, we also #Advocate lift all #Spoonies!!   No you are not defined by your diagnosis! Yet we #Overcome the reality & shift paradigms with a focus driven by optimism, positivity, & Empathy with Grace increasing serotonin (FROM—->>WIKIPEDIA-… Read More »#TubieTPNTuesday

May We? Speak?

May I share with you a deep truth today? It may not be well said, but it is heartfelt. We are a community heartbroken by loss with two (another I saw added late in the day by another sister in the community known through their… Read More »May We? Speak?

#2016Holidays

Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you work your way through the… Read More »#2016Holidays

#InvisibleNoMore

Here are some links to our multi-level issues faced by – not all- but so many of us!  #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO  #InvisibleIllness —  this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore

Live

I want to live. How much longer? How much more Grace will I be given? I fight with every breath to win. To hold on until this incurable becomes curable. Until the Invisible Illnesses become visible. When the Doctors tell me I am running out… Read More »Live