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#AllOfMe 

Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a  million I wouldn’t know but what I do you know, all of you are with all of… Read More »#AllOfMe 

Did the Tree Speak?

When we speak~~ is it the tree in the woods falling ~~~ages old question & scenario?  Did it make a sound, if no one heard it? This is our vulnerability with a chronic illness. We try to keep our strength up, both emotionally, physically, spiritually,… Read More »Did the Tree Speak?

#2016Holidays

Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you work your way through the… Read More »#2016Holidays

November 1999

How to use your thoughts of #Optimism #Positivity #Hope to keep #ChronicIllness #MotilityDisorders like #Gastroparesis #ChronicIntestinalPseudoObstruction #ColonInertia #MitochondrialMalabsorption from defining you or more importantly making you more miserable than you need to be. I began my infusion therapies during this time of the year in… Read More »November 1999

#IVoted & #CIP Sat🕯Down

#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have Gastroparesis, colon inertia, & mito… Read More »#IVoted & #CIP Sat🕯Down

What I Was Taught.

My Warrior voice says, thank you,  Why? Because you taught me I have no control.  What a strange thing to say, thank you to, right?  But all of the loss taught me my minimal win was the most important & what truly mattered.  When I… Read More »What I Was Taught.

#MotilityMoonShot

I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We”  not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot

Advocacy a thought

Advocacy at its core is focused on a mission of #CureGP but there is also a much larger goal interwoven into advocacy. While Tweeting, posting, blogging, tumbling, Instagraming, & creating campaigns alongside of projects which are never about anyone person but #GPNation. The larger advocacy… Read More »Advocacy a thought

#RightCare = #Research

Twenty-Five years of Advocacy for patients with Gastroparesis  Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell  It is with sincere & deep… Read More »#RightCare = #Research