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Advocacy

The Silence We Speak

  • Debbie 

The Silence We Speak The humanity of us all It isn’t inanimate Nor is it invisible We are one nation/ one world/ one for all- all for one The silence we speak or silently never at all as zero and beyond Is the loudest of… Read More »The Silence We Speak

Time is True

  • Debbie 

Time Is True We have now the truth of us the joy of our mystery lives inside each of us we beseech all to be true Not so much- roses are red, violets are blue Kind of poetry, not this. time is true purges all… Read More »Time is True

Vagus Nerve

  • Debbie 

One is that when we are bored or tired, we just don’t breathe as deeply as we usually do. As this theory goes, our bodies take in less oxygen because our breathing has slowed. Therefore, yawning helps us bring more oxygen into the blood and move more carbon dioxide out of the blood. Why everything comes… Read More »Vagus Nerve

#ChronicTime #ChronicClock

  • Debbie 

#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold variables. There is no guilt,… Read More »#ChronicTime #ChronicClock

Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

  • Debbie 

Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

Jan 11, #2020Motility

  • Debbie 

Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues and their root causes &… Read More »Jan 11, #2020Motility

Thankful Thursday -Advocacy Options

  • Debbie 

https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic illnesses layer over each other… Read More »Thankful Thursday -Advocacy Options

#2020Motility Cures

  • Debbie 

#2020 #Motility #GP #Cures Speak your truth, chronicle your chronic journey, empowering yourself & others towards research & treatments regardless of our level of paralysis, symptoms, response to available treatments. We all deserve a quality of life & care while seeking cures for our chronic… Read More »#2020Motility Cures