Are you an advocate seeking to do all you can with your spoon/s, literally & figuratively? Mentally digesting (yes, the laughter of visualization of it al!:-) Functional Gastrointestinal and has Disorders Research Enhancement Act of 2019 #FGIMD #Motility #Digestive #HR3396 https://www.congress.gov/bill/116th-congress/house-bill/3396 https://www.iffgd.org/ The International Foundation… Read More »Advocacy-2019
Are you an advocate seeking to do all you can with your spoon/s, literally & figuratively? Mentally digesting (yes, the laughter of visualization of it al!:-) Functional Gastrointestinal and has Disorders Research Enhancement Act of 2019 #FGIMD #Motility #Digestive #HR3396 https://www.congress.gov/bill/116th-congress/house-bill/3396 https://www.iffgd.org/ The International Foundation… Read More »Advocacy 2019
Seeking cures is a journey. Life is filled with lessons. We are not liabilities nor disabilities, but beautiful works of art reflecting each other’s lives upon this brief canvas. If I see you, you hear me, we feel each other, then all of us will… Read More »Rare Disease Day 2/28/2019
Your/my appointment/placement on our planet is not your nor my choice/predetermination_ your skin, hair, gender, eyes, are not your doing nor decision. We are here as a united community of humanity. Therein, what we choose to do as a part our mutual membership in this… Read More »A Choice? Nay It Is Not!
#MitochondrialAwarenessMonth Sept 22 our online/ offline awareness day! How do I tell you about my mito? The easiest way is to describe how your organ systems behave when you age. Yet in a mito malabsorption dx my bones were 86 yrs old but I was… Read More »The Mitochondrial/Motility Journey
https://youtu.be/86Q40getcIY My video continues to illicit chronic thoughts after prayers and meditation. I never know where I will go in these moments until they have come to their completion. #Muchness allows us to prevail with our Father as children when otherwise our world tries to… Read More »I Am Still Here And I am Not Ready to Give Up
#SpoonieSunday #Gastroparesis #CureGP #Tweet_Eat #Empathy #Awareness#worldwide better #treatment #research #QOL #QOC #Cures #diabetes #mito #POTS#CIP #ColonicInertia #ChronicMigraines #Chronic #Illnesses #invisible#incurable layered with multiple diagnoses often, but without multiple successful #treatments #research #statistics leading towards viable solutions to help comorbidity rates often faced by the millions… Read More »Medical Walmart
A recipe for finding hope in a valley of unknown. This is not an overnight, snap your fingers, blink of an eye, recipe. Like the many layers, most of us live with, it is gradually built/earned overtime. Unknown in the chronic journey includes many moments… Read More »A Recipe for Hope
I am excited by the new layers of joy presenting itself. Yes there are some extra items in this picture which are not Blue Willow! We are about our story, Warriors! Our story has many layers! The rice bowl with the fish was from a… Read More »The Legend of The Blue Willow Plate
“Forgetting is just forgetting, except when it’s not. Then they call it something else.” The Mad Hatter When we see the miracles, wisdom, strength, Joy, Peace, Faith, Gentleness, Patience, Love, Kindness, Self-Control, Goodness of His Spirit meeting us in our journey…. we can see, hear,… Read More »#ShareASpoonSaturday with #MuchNess
