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advocacy

Social Distancing

  • Debbie 

How Does This Help? We are limited during #SocialDistancing & #StayAtHome, BUT… WE — YOU— Me—US Have been magnificent! #TogetherAtHome has helped our humanity —all of us together!!! Worldwide- we mourn all loss of life & lift our fellow warriors fighting now to stay alive.… Read More »Social Distancing

Vagus Nerve

  • Debbie 

One is that when we are bored or tired, we just don’t breathe as deeply as we usually do. As this theory goes, our bodies take in less oxygen because our breathing has slowed. Therefore, yawning helps us bring more oxygen into the blood and move more carbon dioxide out of the blood. Why everything comes… Read More »Vagus Nerve

#ChronicTime #ChronicClock

  • Debbie 

#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold variables. There is no guilt,… Read More »#ChronicTime #ChronicClock

Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

  • Debbie 

Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

Chronic Journey 12-2-2019

  • Debbie 

Chronic Journey • Every Chronic Journey is Different simply complex by our DNA • Humanity begins at our chromosome completion, BUT • with incurable, invisible, illnesses with a genetic component • Our chronic/human journey begins an unfolding – or not • Within the parameters &… Read More »Chronic Journey 12-2-2019

How to Make our Voice Heard

  • Debbie 

https://www.iffgd.org/ “Make Your Voice Heard!” A guided suggestion for helping us to engage with our congressional representatives. You are invited to join the thousands of patients and their families, nurses and physicians, researchers, and members of the public working to raise critical awareness for all… Read More »How to Make our Voice Heard

  • Debbie