I keep a “Bible of Me” typed out – which I need to print out for a clean version. It is approximately 5 pages long. Why? I do this to keep a mental healthy me. A simple and lighter version of me, while I fight… Read More »Foundation of Me
My Gastroparesis/MotilityDisorder/ #POTS #CIPO Colon Inertia #Migraine- Mitochondrial-Malabsorption Journey While keeping an #IamOkayNow Attitude with Advocacy The beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was a reaction to Indocin. I… Read More »My Gastroparesis Journey 10/16/2017
Happy Thanksgiving “MY DEAR FAMILY 2006” I am bringing y’all forward with us to The Thanksgiving 2017 and praying / hoping our #GPReporting #Advocacy can bring positivity & optimism with love to all this year! In March of 2006 I received a permanent Gastric Electrical… Read More »Happy Thanksgiving “My Dear Family” 2006
#CUREGPADVOCACYTHOUGHTS #GPinSync4ACure Happy #ShareAStorySaturday on this #CureGP journey as we begin to put our summer to bed, let me share a part of my story. Y’all cannot be on my page long without knowing my story includes The Great Smoky Mountains. As I went to… Read More »#ShareAStorySaturday #GPVoguePhotoShoot
How being in a #PeaceBoat works for Chronic Illness – > On a journey of invisible, incurable illness seeking cures, we change, some good, some different, than anticipated, some not, but we change in our crisis from the bending of the opportunity. How did the… Read More »#Chronically #PeacefullyHopeful
#HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener in Twitter while advocating on… Read More »#AdvocacyDay 9/12/2017
As I watch Biographies,documentaries, and movies with content about “our nature” throughout time immemorial with this issue called “racism, prejudice, misogyny, bigotry, hate, discrimination, etc.. and while I say “our” it is not all of “our” many, some, chosen have made their historic voices heard… Read More »A Thought On Our Nature
New Treatment Trials /Procedures for Gastroparesis /Motility Digestive Disease Disorders I think it is always helpful to add information and explanation Peroral Endoscopic Myotomy (POEM) | Johns Hopkins Division of Gastroenterology and Hepatology http://www.hopkinsmedicine.org/gastroenterology_hepatology/clinical_services/advanced_endoscopy/peroral_endoscopic_myotomy.html Early human experience with Per-Oral Endoscopic Pyloromyotomy (POP). – SAGES Abstract… Read More »New Procedures/GP
While still fully in the midst of an amazingly beautiful journey… Gastroparesis Motility Disorder Awareness Month in Arkansas and August Gastroparesis Awareness Month Nationally. I cannot help but reflect upon on all of the Awareness in its various forms on all of the events &… Read More »#FactFriday Reflect
Happy #Green4GP to #CureGP #TheEvent http://goo.gl/Do2iui #FactFriday y’all are amazing #warriors “supercalifragilisticexpialidocious” You know the phrase is legendary and so are y’all! #Patient_Advocates taking confusion, adversity, no’s, dead ends negative thoughts, pessimism and turning it all to the greater good for a better outcome… sometimes… Read More »A #FactFriday #BeSeenBeingGreen4GP
