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#CIPO

Gastroparesis Awareness Month

  • Debbie 

Gastroparesis Awareness Month an insight from a chronic anniversary event- Acute oxygen deprivation, UTI, an update into gene testing for MTHFR I never left. While a lot has happened. Advocacy and awareness never change, just as our goals remain a constant fixture. A question, became… Read More »Gastroparesis Awareness Month

It’s Like This

  • Debbie 

It’s like this …. Chronic journey #BeYou! Everyday always 24/7/2020 Everyday is a masterpiece Every moment is fabulousitynessuniqnes Magnificent on blast + actified You are an exquisite blessing matched by no one! Every breath an attribute to be timelessly treasured whenever you have enough energy… Read More »It’s Like This

Charity /Advocate Who We Are

  • Debbie 

#ShareASpoonSaturday We are patient and kind while sending our virtual spoons out to each other worldwide. Millions with incurable illnesses living with chronic illnesses. Lifting each other up in charity. Charity is never selfish, haughty or rude. We live each day in advocacy over our… Read More »Charity /Advocate Who We Are

Thank You Warriors

  • Debbie 

As we wind down our month of advocacy, reflection on our chronic journey tells us about our #warriorship 24/7/365 it is magnified in our month in August, on the 4th Saturday of August each year. Warriors of any chronic illness know the priceless moments we… Read More »Thank You Warriors

#MotilityMoonShot

I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We”  not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot

Priceless-You Are

Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you see outside your window and… Read More »Priceless-You Are

#IIWK16

#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16

#InvisibleNoMore

Here are some links to our multi-level issues faced by – not all- but so many of us!  #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO  #InvisibleIllness —  this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore

Do You See?

Do You see? My invisibility  The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight  The chronic intestinal pseudo-Obstruction Syndrome #CIPO  DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?