I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We” not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot
Twenty-Five years of Advocacy for patients with Gastroparesis Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell It is with sincere & deep… Read More »#RightCare = #Research
#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
If you #TakeABite with a tummy or Digestive Tract which is “normal” ? It goes #swimmingly well! (Minus the occasional virus or upset tummy – but imagine having the flu {without a high fever or a few of the other symptoms} or food poisoning –… Read More »Did You Know?
#Advocating – for ourselves & our community! Tomorrow is not promised- but blessed- when we give our best For this is not for ourselves but to save others we will never know even though our DNA – makes this path/journey unique? We are intimately acquainted… Read More »#Advocating – Tomorrow is not Promised
Would the #RedHatSociety mind us doing a #JumpOff for #GastroparesisAwareness #Green4GP #Greenified but do it #Fancy & incorporated #TakeABite4GP we see many sooo many T😖👒 Many with the #5MillionGPStrong wouldn’t it be fun to do the #GreenHatSociety for #CureGP ? & you can get that… Read More » #RedHatSociety w/ a #GP twist?
I want to live. How much longer? How much more Grace will I be given? I fight with every breath to win. To hold on until this incurable becomes curable. Until the Invisible Illnesses become visible. When the Doctors tell me I am running out… Read More »Live
Where you see adversity I see rainbows. Where you see problems I see solutions. Where you see complaints I see possibilities.Where you see negativity I see positivity. Where you feel the need to put down, I will find positive production to go up every time.… Read More »#PeaceBoat Philosophy #GP #TakeABite4GP
