We gave you ugly and you see beauty, are you crazy? No, not Us! Your life is in shambles to an onlooker even some say “a prison.” Still you say a “sanctuary,?” Me thinks your marbles have escaped your Royal Crown, infused bag of “natural”… Read More »Dance vs Complain
Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a million I wouldn’t know but what I do you know, all of you are with all of… Read More »#AllOfMe
Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you work your way through the… Read More »#2016Holidays
#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have Gastroparesis, colon inertia, & mito… Read More »#IVoted & #CIP Sat🕯Down
My Warrior voice says, thank you, Why? Because you taught me I have no control. What a strange thing to say, thank you to, right? But all of the loss taught me my minimal win was the most important & what truly mattered. When I… Read More »What I Was Taught.
I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We” not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot
#RCAW #RightCare #RightCareActionWeek @LownInstitute No matter our income (which may get a buffer — briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare! When 1 is turned away, to… Read More »#RCAW #RightCare =
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
If you #TakeABite with a tummy or Digestive Tract which is “normal” ? It goes #swimmingly well! (Minus the occasional virus or upset tummy – but imagine having the flu {without a high fever or a few of the other symptoms} or food poisoning –… Read More »Did You Know?
