#AutoImmuneDisease

Advocacy thoughts

In 2006 when my blog was set up by my Dear Steven son, www.iamokaynow.com I chose it from the perspective of speak it, believe it, receive it, and the journey I would be blogging about would not be about “me” […]

We Will Find You

Happy #Green4GP #FactFriday on the #CureGP Journey #WeWillFindYou “We Will Find You” https://youtu.be/Jv8IqJm6q7w by Lecrae ft Tori Kelly lifting up all chronic community’s in pain sending love. The St Jude’s Children’s Research Hospital & #Cancer survivors or those #RIPAngels in […]

Foundation of Me

I keep a “Bible of Me” typed out – which I need to print out for a clean version. It is approximately 5 pages long. Why? I do this to keep a mental healthy me. A simple and lighter version […]

My Gastroparesis Journey 10/16/2017

My Gastroparesis/MotilityDisorder/ #POTS #CIPO Colon Inertia #Migraine- Mitochondrial-Malabsorption Journey While keeping an #IamOkayNow Attitude with Advocacy The beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was […]

#ShareAStorySaturday #GPVoguePhotoShoot

#CUREGPADVOCACYTHOUGHTS #GPinSync4ACure Happy #ShareAStorySaturday on this #CureGP journey as we begin to put our summer to bed, let me share a part of my story. Y’all cannot be on my page long without knowing my story includes The Great Smoky […]

#Chronically #PeacefullyHopeful

How being in a #PeaceBoat works for Chronic Illness – > On a journey of invisible, incurable illness seeking cures, we change, some good, some different, than anticipated, some not, but we change in our crisis from the bending of […]

We Are The Cogs

I’m Nobody! Who are you? Emily Dickinson, 1830 – 1886 I’m Nobody! Who are you? Are you – Nobody – too? Then there’s a pair of us! Don’t tell! they’d advertise – you know! How dreary – to be – Somebody! How public – like a Frog – To tell one’s name – the livelong […]

A #FactFriday #BeSeenBeingGreen4GP

Happy #Green4GP to #CureGP #TheEvent http://goo.gl/Do2iui #FactFriday y’all are amazing #warriors “supercalifragilisticexpialidocious” You know the phrase is legendary and so are y’all! #Patient_Advocates taking confusion, adversity, no’s, dead ends negative thoughts, pessimism and turning it all to the greater good […]

Picture This~~

1) You are a sink (yet still have emotions) and your plumbing is completely backed up it keeps – seeping- tiny squirts of liquid every now and then (from your bottom) but it is an implosion of stinky backed up […]