#spoonie

A Thought On Our Nature

As I watch Biographies,documentaries, and movies with content about “our nature” throughout time immemorial with this issue called “racism, prejudice, misogyny, bigotry, hate, discrimination, etc.. and while I say “our” it is not all of “our” many, some, chosen have […]

A #FactFriday #BeSeenBeingGreen4GP

Happy #Green4GP to #CureGP #TheEvent http://goo.gl/Do2iui #FactFriday y’all are amazing #warriors “supercalifragilisticexpialidocious” You know the phrase is legendary and so are y’all! #Patient_Advocates taking confusion, adversity, no’s, dead ends negative thoughts, pessimism and turning it all to the greater good […]

Being Chronic

Where is your best step in an uncertain world? Let’s just walk through this maize together. You either have been living with “incurable” since you were very young or are suddenly a collection of symptoms begin raining down upon you. […]

#2016Holidays

Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you […]

#IVoted & #CIP Sat🕯Down

#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have […]

What I Was Taught.

My Warrior voice says, thank you,  Why? Because you taught me I have no control.  What a strange thing to say, thank you to, right?  But all of the loss taught me my minimal win was the most important & […]

#MotilityMoonShot

I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We”  not an “I” ~ this is a purposeful exercise. I am a patient/advocate and […]

Agree to Disagree

Life is too short too precious  To not slow your roll & do otherwise.  I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my […]

#IIWK16

#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us […]

Do You See?

Do You see? My invisibility  The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight  The chronic intestinal pseudo-Obstruction Syndrome #CIPO  DO YOU KNOW I quit talking about the way this […]