How do we remain ourselves in a social media platform where it can be a lil rough at times? We can only share a perspective & thoughts from a viewpoint of patient/advocacy & with the knowledge of a singular “big picture” goal of many in… Read More »Inspired
How we found a way to turn up the volume on a lil cheer, laughter, & happiness! While brain storming about how we (meaning a lot of a community facing many #ChronicIllnesses) can use the lil Santa Elf to (who was patiently waiting in Hobby… Read More »#GPElfie
I said, “Of course! I can in the true folly of pain (because my fanny fakes led me astray from the path I had diligently obligated myself to take every day in every way). But old dog new tricks seems to be literal except I… Read More »And we say #HonorShip
How did I know? Your fingerprint told me so. It said, “She/He is THE ONE!” The best at all she/he does in all she/he does when moving through life as herself/himself, she/he wins- won! You say, “Insufficient evidence?” I say, “Oh no, it is not… Read More »How?
Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a million I wouldn’t know but what I do you know, all of you are with all of… Read More »#AllOfMe
When we speak~~ is it the tree in the woods falling ~~~ages old question & scenario? Did it make a sound, if no one heard it? This is our vulnerability with a chronic illness. We try to keep our strength up, both emotionally, physically, spiritually,… Read More »Did the Tree Speak?
Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you work your way through the… Read More »#2016Holidays
How to use your thoughts of #Optimism #Positivity #Hope to keep #ChronicIllness #MotilityDisorders like #Gastroparesis #ChronicIntestinalPseudoObstruction #ColonInertia #MitochondrialMalabsorption from defining you or more importantly making you more miserable than you need to be. I began my infusion therapies during this time of the year in… Read More »November 1999
#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have Gastroparesis, colon inertia, & mito… Read More »#IVoted & #CIP Sat🕯Down
I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We” not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot
