THE SPOONIE DANCE NOT THE TANGO NOR THE FLAMINGO NOPE NOT THE SPOLIRIFOROUS SWING NO-SIREE- NOT THE TEXAS TWO-STEPPING SLIDE NEITHER OF THESE ARE WE MAMBOING We are doing the “Spoonie” it is made of a twirl. We must manage it carefully, A virtual spin… Read More »SPOONIE DANCE
NOAH”S ARK REFLECTION #FLASHBACKFRIDAY #FACTFRIDAY As a child playing with my collection of stuffed toys, I often pretended to be on an Ark with Noah. Now, as an advocate, I am joining my friends, family, #GPReporters, fellow advocates, warriors, #ChronicWarriors, #GPWarriors, on a campaign #2By2… Read More »Noah’s Ark Reflection #FlashbackFriday
I was Reading, Thinking, & Praying Leviticus 11 3/21/2018 Thinking, reading, praying, contemplating on the Lord’s explanation of what is clean and unclean It is with this in mind… as I do my Linzess in the background of #MotilityDigestiveDisease #PeaceBoat prayers ..I pray for all… Read More »Advocacy/Prayer
Sometimes we have to use our energy/spoons to focus on healing ourselves. In a migraine, it takes every single bit of energy I have to focus on my biofeedback training. I slow my breathing, then my heartbeat, heart rate, and hold it purposely to a… Read More »Focus
While we are living our best lives, we sometimes have to do our best in hard situations. We were on a short fishing/photo/walking-trip. As we began our outing today, “Mr GreenFisherMan expedition”–> to find a bow fishing location. We took several photos to remember our… Read More »Sharing The #GPTruthofItAll
I hope and pray. Each and every single day, my actions, words, interactions, physically, spiritually show you my truth. The truth of my legacy. The Wheel of Legacy- from which – I am a cog- a peon – it is far larger, grander, more meaningful,… Read More »LEGACY
The United Mitochondrial Disease Foundation Does a great job of educating, empowering, and advocating for people about mitochondrial diseases. They also do a lot work, among others, in trying to help change the mitochondrial atmosphere for patients, supporters, and physicians. Many patients are in the… Read More »The United Mitochondrial Disease Foundation/IFFGD/Advocacy
Chronic Warriors/Advocates/ #GPReporters – How We Approach Advocacy How can we advocate with our numerous chronic illnesses, lift our communities by sharing our journey while speaking our truth with a positive voice and an uplifting message? We are, in many ways, ambassadors of chronic. We… Read More »How We Advocate
BEHOLD Please, see with me the most brilliant group of technicolor/s you have ever yet to see. Next, please inhale with me the most heavenly of scents you have yet to smell. Now, carefully mute all of your devices, put in your headphones, buds, whatever… Read More »Behold
My Steps Are In Accord With Prayers/the Universe What do I mean? I would like you to picture a walkway say 100 yards long. The length of a football field. It is approximately 3 feet wide. When the river is down you can see cracked… Read More »My Steps Are In Accord
