As Mom’s we pray we achieve one goal ..our kids are healthy happy and blessed with the knowledge of how gifted, loved they are and in turn they can do/achieve anything they put their mind to do.. it won’t come easily necessarily but they can… Read More »#MothersDay17
Cancer can be incurable and sometimes an invisible disease — Motility Disorders are incurable and often invisible as well. There ends our walk. .. on the surface. Cancer has been given acknowledgement, awareness, research, validation on its effects. #StandUp4Cancer The results of all of this… Read More »Part 2 Reference #SurvivorShip
#Gastroparesis = #GP #MotilityDisorders #ChronicIntestinalPseudoObstructionSyndrome #ColonicInertia #MitoChondrialMalabsorption #HR1187 http://goo.gl/MK8Koz In the #USA TO THEN GO #WorldWide Why we “Cheat eat” while living with a broken, disabled, malfunctioning, in varying degrees of “paralysis” (this word is misleading yet also describes a system failing to work as… Read More »Why or What is a “Cheat Eat”
#Advocacy with friends, supporters, & patient/advocates! Whether you are a #GPReporter in the #GPNetwork or a #Chronic #Spoonie #Warrior We are 24/7/365 therefore we are blessed to be given a constant opportunity to do our own unique #Reports & #Advocacy A list of hashtags to… Read More »#Advocacy with Friends
I found you on the corner of 54th & Main. There is no shame in our name nor our game! We are “Bossed up!” There is no “game!” We have #NoBuckets! Only Flames – So bright like the sun – you beta’ be careful or… Read More »54th & Main Agape
Do you have digestive dreams? I do, like a person in a wheel chair? Or their limbs do not work? Our digestive tracts malfunction in many varying ways, from person to person—We cannot “see” what is going on inside & its varying stages of digestion… Read More »Digestive Dreams
#BigGirlPantyAdvocacy we say the phrase all the time let’s get on our “Big Girl Panty” sassy and our #GPReporter advocacy to create a new lane of awareness. Lisa Rinna showed the depends silhouette brand “sexy” possibilities. We can show our #PositivelyReal brand of #GP not down… Read More »#BigGirlPantyAdvocacy
Prayer Meditate (Reservoir empty beep beep beep— enter to reset volume) Some know – some empathize – some are our Warriors in arm in arm! Who know of which we speak,,, the best kind when the energy levels go to -5 (yes a negative 5)… Read More »Thank you, Warriors
Happy #TubieTPNTuesday !! 2/7/2017 We celebrate you being you, we also #Advocate lift all #Spoonies!! No you are not defined by your diagnosis! Yet we #Overcome the reality & shift paradigms with a focus driven by optimism, positivity, & Empathy with Grace increasing serotonin (FROM—->>WIKIPEDIA-… Read More »#TubieTPNTuesday
May I share with you a deep truth today? It may not be well said, but it is heartfelt. We are a community heartbroken by loss with two (another I saw added late in the day by another sister in the community known through their… Read More »May We? Speak?
