#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
Do You see? My invisibility The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight The chronic intestinal pseudo-Obstruction Syndrome #CIPO DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?
What a quilt says & does. A quilt is a unique testimony & cultural time teller. Let me share. As my mother cared for my step-father in his declining health she began to gather her memories of her grandmother’s then expand upon them which she… Read More »Mom’s Quilts & it’s Lessons
Doctor are you worthy? We are priceless. What is your protocol for a multilevel situation (either you know or in the process of knowing) Dr are you able to reach out to specialists? Do you know a good palliative care team to support my various… Read More »A Doctor Interview
Empathy vs Sympathy What is the difference? Compassion vs Passion What is the difference? Speaking vs Listening What is the difference? Seeing vs hearing What…..? Doing vs Watching What…? In the Church vs Being the Church What.. Love vs Judgement What Conditional vs Unconditional Hmmmm… Read More »Empathy
We are challenged often needing more energy than what we are blessed with on any given day so our spoons have to be evaluated and then sparsely given out during our day.Therefore perhaps #ThoughtfulThursday for #InvisibleIllness #SparselySpooned #SparselySpoons #Spoons #Spoonies why not throw a tongue… Read More »#ThoughtfulThursday #SparselySpoons #Spoonies
As I sit, pray, meditate about the best place to put my love & prayers . (You are all covered by the way) I come to the place I begin in Faith Hope, Optimism, Love, Trust & believing the burden is not mine. See, for… Read More »My Day
Let’s do a Motility Disorder themed everyday of the week! We are on #WarriorWednesday I really like #MotilityMonday (MoveitMonday) #ThankfulTuesday we could do #ToiletTuesday #TubieTuesday followed by #WarriorWednesday then #ThankfulThursday ya know God Bless America cause the colon moved or we have hope!? It… Read More »Can I do a video in my blog? I really would like to! For #InvisibleIllness!
