Seeking healing, and control while striving to find answers to the why …. a body is spiraling out of control physically from an undiscovered illness. This can be a devastating experience without support both family, medical, and spiritual of some type. When you eventually arrive… Read More »Seeking Healing & Control While Chronic
#MitochondrialAwarenessMonth Sept 22 our online/ offline awareness day! How do I tell you about my mito? The easiest way is to describe how your organ systems behave when you age. Yet in a mito malabsorption dx my bones were 86 yrs old but I was… Read More »The Mitochondrial/Motility Journey
As we wind down our month of advocacy, reflection on our chronic journey tells us about our #warriorship 24/7/365 it is magnified in our month in August, on the 4th Saturday of August each year. Warriors of any chronic illness know the priceless moments we… Read More »Thank You Warriors
#TheEvent #WeAreRare aka #Special We are #Millions upon #Millions in our many #Chronic communities. Our #Greenness #Muchness #Spoonie is a #Special #Advocacy #LivingLoud towards #Cures #SocialMedia #NonProfits, #Warriors, #SupportGroups, #MedicalTeams, #ChronicCommunities, all coming #together for our greater good/ #Awareness! #Green4GP to #CureGP #Green4Mito to #CureMito… Read More »#TheEvent Awareness Month Chronic Warriors aka Courageous Advocates & Their #Hashtags
We choose to face #adversity with #advocacy, no matter the #chronic illness, its #incurable #invisible status —> we #Spoonies believe in #TogetherWeFightTogetherWeWin -Glitter Queens Global – while lifting each other. (April GP ) Being a #BeaconOfHope AGMD (Maryangela) our Motility Bill #HR1187 IFFGD (Tegan &… Read More »Gastroparesis Motility Disorder Awareness Month 2018 Miracles #Adversities with #Advocacy
We need warriors in each area of our state to reach out to their gastroenterologists in their area. I believe we have gastroenterologists who are able to handle our care, but we need to actually reach out, actively inquire, while explaining the needs of our… Read More »If We Build It -Dreams
I am praying you #SeeUs #HearUs #FeelUs all! Whether you can #TakeABite4GP in #empathy or show support for our #MotilityIssues like #GP #Gastroparesis #CIP #ColonicInertia #SIBO #Crohns & so many other #AutoImmuneDiseases creating #ChronicIllnesses & their layers are often invisible, incurable, unnoticed or worse unaddressed… Read More »Critical Mass In a State of Grace
https://youtu.be/86Q40getcIY My video continues to illicit chronic thoughts after prayers and meditation. I never know where I will go in these moments until they have come to their completion. #Muchness allows us to prevail with our Father as children when otherwise our world tries to… Read More »I Am Still Here And I am Not Ready to Give Up
When the new “Princess to be a Queen” is instructing some small young girls on how to get “in touch with their Princess” quality! She gives them all tiaras, instructs them on how to walk, wave, & be! While telling them they are princesses already?… Read More »The Princess Diaries2: Royal Engagement
“Forgetting is just forgetting, except when it’s not. Then they call it something else.” The Mad Hatter When we see the miracles, wisdom, strength, Joy, Peace, Faith, Gentleness, Patience, Love, Kindness, Self-Control, Goodness of His Spirit meeting us in our journey…. we can see, hear,… Read More »#ShareASpoonSaturday with #MuchNess
