Month: September 2016

Priceless-You Are

Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you […]

I Find AWay

Ill find a way  Everyday I will see your good & the peace in you Because in me I hold peace, patience, optimism, & the bridge with Love I will find a way everyday to see unity because the alternative […]

Pumkinspice Smoothie 

1 cup puréed pumpkin  1/2 cup ice cubes  1/4 avocado  2 tablespoons ground flax seed  1 tsp cardamom  1/4 tsp ginger or drops of ginger root extract  3 tablespoons apple sauce 1 cup coconut milk 1/ 2 cup apple cider […]

Have you been on the other end?  Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss […]


#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us […]

Be Visible

My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service  Eagles always acknowledge that which made them this way See […]


Here are some links to our multi-level issues faced by – not all- but so many of us!  #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO  #InvisibleIllness —  this is just a starting point I will be adding to it […]

Do You See?

Do You see? My invisibility  The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight  The chronic intestinal pseudo-Obstruction Syndrome #CIPO  DO YOU KNOW I quit talking about the way this […]

Mom’s Quilts & it’s Lessons

What a quilt says & does. A quilt is a unique testimony & cultural time teller. Let me share. As my mother cared for my step-father in his declining health she began to gather her memories of her grandmother’s then […]

A Doctor Interview

Doctor are you worthy? We are priceless. What is your protocol for a multilevel situation (either you know or in the process of knowing) Dr are you able to reach out to specialists? Do you know a good palliative care […]