• Advocacy
  • Priceless-You Are

    Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you see outside your window and want the thing you think do not have?  Do you […]

  • Inspiration
  • I Find AWay

    Ill find a way  Everyday I will see your good & the peace in you Because in me I hold peace, patience, optimism, & the bridge with Love I will find a way everyday to see unity because the alternative is too heavy  Therefore if you have something to say? Which is not kind, take […]

  • Advocacy
  • Pumkinspice Smoothie 

    1 cup puréed pumpkin  1/2 cup ice cubes  1/4 avocado  2 tablespoons ground flax seed  1 tsp cardamom  1/4 tsp ginger or drops of ginger root extract  3 tablespoons apple sauce 1 cup coconut milk 1/ 2 cup apple cider  1/4 cup maple syrup, or sweetener of your choice  1 teaspoon cinnamon 

  • Advocacy
  • Untitled

    Have you been on the other end?  Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss of  – pounds!”  Have been on the end of “arrogance” without empathy? “I sure do […]

  • Advocacy
  • #IIWK16

    #IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue. If we need to accomplish activities– like a day of […]

  • Advocacy
  • Be Visible

    My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service  Eagles always acknowledge that which made them this way See buzzards & pigs ask questions not because of the greater good but because of a […]

  • Advocacy
  • #InvisibleNoMore

    Here are some links to our multi-level issues faced by – not all- but so many of us!  #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO  #InvisibleIllness —  this is just a starting point I will be adding to it as I find more resources.  Please remember we are #Warriors & often our best source […]

  • Advocacy
  • Do You See?

    Do You see? My invisibility  The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight  The chronic intestinal pseudo-Obstruction Syndrome #CIPO  DO YOU KNOW I quit talking about the way this goes years ago? Diapers or Depends?  I am still priceless because I said so!  Not […]