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Advocacy

My Gastroparesis Journey 10/16/2017

  • Debbie 

My Gastroparesis/MotilityDisorder/ #POTS #CIPO Colon Inertia #Migraine- Mitochondrial-Malabsorption Journey While keeping an #IamOkayNow Attitude with Advocacy The beginning. I believe my journey began in 1989 with the first migraine, but I didn’t realize it. The first migraine I had was a reaction to Indocin. I… Read More »My Gastroparesis Journey 10/16/2017

This is My Hope

  • Debbie 

This is my hope for you, the child I love so dearly. I hope you learn to love yourself as much I did the moment I saw your face. I hope money, lack of or abundance of, never determines your self-worth. I hope you see… Read More »This is My Hope

Call to Action

  • Debbie 

#ThankfulThursday advocacy is a constant companion for a #GPWarrior #GPReporter aka #Chronic #Patient_Advocate We seek to find inspiration in its darkest of moments. There are weeks when your body and outside forces seem as if they are plotting against you personally, but they are not–… Read More »Call to Action

Looking For The Latest on 9/27/2017 #CureGP

  • Debbie 

Sometimes you stumble upon something you thought you knew about—> Alternate medicine for Gastroparesis I found this lil morsel of information on the http://www.mayoclinic.org/diseases-conditions/gastroparesis/diagnosis-treatment/treatment/txc-20323142 While looking for the newest treatments available or on deck for Gastroparesis or Motility Disorders. When you are diagnosed with a… Read More »Looking For The Latest on 9/27/2017 #CureGP

#AdvocacyDay 9/12/2017

  • Debbie 

#HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener in Twitter while advocating on… Read More »#AdvocacyDay 9/12/2017

Let’s Look

  • Debbie 

Idiopathic Gastroparesis, how I seek clarification and communication- I try to find tangible real life objects to compare.. onions if strong enough, can bring tears to a the strongest … I wonder if we could make a comparison to incurables, invisibles, to onions? You peel… Read More »Let’s Look