#RCAW #RightCare #RightCareActionWeek @LownInstitute No matter our income (which may get a buffer — briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare! When 1 is turned away, to… Read More »#RCAW #RightCare =
What if we could fly To the moment of goodbye Without the knowledge of the dyer Yet still in the grace of the gone by enlighten our souls to see beyond the bye & its Nature of the impending flashes before our eyes We would… Read More »Aware
Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you see outside your window and… Read More »Priceless-You Are
Ill find a way Everyday I will see your good & the peace in you Because in me I hold peace, patience, optimism, & the bridge with Love I will find a way everyday to see unity because the alternative is too heavy Therefore if… Read More »I Find AWay
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
Have you been on the other end? Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss of – pounds!” Have been… Read More »
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
Do You see? My invisibility The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight The chronic intestinal pseudo-Obstruction Syndrome #CIPO DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?
Empathy vs Sympathy What is the difference? Compassion vs Passion What is the difference? Speaking vs Listening What is the difference? Seeing vs hearing What…..? Doing vs Watching What…? In the Church vs Being the Church What.. Love vs Judgement What Conditional vs Unconditional Hmmmm… Read More »Empathy
