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Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

  • Debbie 

Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

Jan 11, #2020Motility

  • Debbie 

Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues and their root causes &… Read More »Jan 11, #2020Motility

Thankful Thursday -Advocacy Options

  • Debbie 

https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic illnesses layer over each other… Read More »Thankful Thursday -Advocacy Options

#2020Motility Cures

  • Debbie 

#2020 #Motility #GP #Cures Speak your truth, chronicle your chronic journey, empowering yourself & others towards research & treatments regardless of our level of paralysis, symptoms, response to available treatments. We all deserve a quality of life & care while seeking cures for our chronic… Read More »#2020Motility Cures

Chronicling the Chronic Journey

  • Debbie 

Chronicling the Chronic Journey We see our experiences through the reflection of ourselves and others these truths empower us all 24/7/365. Definition of chronic 1a:continuing or occurring again and again for a long time chronic indigestion chronic experiments b: suffering from a chronic disease the… Read More »Chronicling the Chronic Journey

The PeaceBoat Perception

  • Debbie 

The PeaceBoat Perception Everything, every moment of our journey is seen, felt, heard, and unconditionally accepted for ourselves and others by this perception. As we traverse our lives we are comforted by our spirit in our physical journey. What does our spirit-mental, emotional, or an… Read More »The PeaceBoat Perception

#SeeYouSunday 12/8/2019

  • Debbie 

#1ForAll_All4One #AdvocacyOverAdversity #Positivity #Optimism lead us through our #Chronic journey #Motility digestive diseases & #mitochondrialdisease millions w/ layers of #incurable #invisible #illnesses know their our truth empowers us & others to seek research, treatments, quality of life & care while seeking cures for our chronic… Read More »#SeeYouSunday 12/8/2019