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#GastroparesisAwarenessMonth

Thank You Warriors

  • Debbie 

As we wind down our month of advocacy, reflection on our chronic journey tells us about our #warriorship 24/7/365 it is magnified in our month in August, on the 4th Saturday of August each year. Warriors of any chronic illness know the priceless moments we… Read More »Thank You Warriors

Pandemonium

  • Debbie 

A Red-lorded Amazon A pandemonium of parrots…. all seeing us with their Intent gaze… What do they see & perceive of us? Do we attribute our thoughts unto them? A hand fed baby will not know itself to be a bird, It thinks differently about… Read More »Pandemonium

#TheEvent Awareness Month Chronic Warriors aka Courageous Advocates & Their #Hashtags

  • Debbie 

#TheEvent #WeAreRare aka #Special We are #Millions upon #Millions in our many #Chronic communities. Our #Greenness #Muchness #Spoonie is a #Special #Advocacy #LivingLoud towards #Cures #SocialMedia #NonProfits, #Warriors, #SupportGroups, #MedicalTeams, #ChronicCommunities, all coming #together for our greater good/ #Awareness! #Green4GP to #CureGP #Green4Mito to #CureMito… Read More »#TheEvent Awareness Month Chronic Warriors aka Courageous Advocates & Their #Hashtags

If We Build It -Dreams

  • Debbie 

We need warriors in each area of our state to reach out to their gastroenterologists in their area. I believe we have gastroenterologists who are able to handle our care, but we need to actually reach out, actively inquire, while explaining the needs of our… Read More »If We Build It -Dreams

1/2WAY THERE?

I cannot trust my memory but I will go with that year.. I heard a book being discussed.. it was “The Four Agreements” by Don Miguel Ruiz … now let me stop ‚úč🏿 you right now .. if you think I am engaging in heretical… Read More »1/2WAY THERE?

In 15 days Advocacy is Getting Louder!!!

There is a great moment about to occur in 15 days the green AWARENESS IN THE AIR which has already been ignited by the heroes in the #GPChronicSuperFabulosityWarriors . We began Gastroparesis/Motility Disorder Awareness Month/Week/Day on August 1,2017 WE HAVE 33 State Proclamations and counting – did you hear me right? 33 STATE PROCLAMATIONS and counting…
yes “We are smelling the roses and not feeling the thorns” ….Abraham Lincoln

When many of us began our journey– for myself? It was a diagnosis in 1999 but symptoms preceded this diagnosis for years/ plus it was a two-part diagnosis. I began with Idiopathic Motility Disorder/Part 2 brought AutoImmune and Mito by way of an explanation: Like many of you? I innately knew there were hereditary links to this puzzle which had been coming together for years.
Because this is Awareness Month…
I want to do a simplified version of this Gastroparesis Fighting For a Change and advocate for those who need words to explain. We, as a community, usually fall into two Categories – Diabetic Gastroparesis or Idiopathic Gastroparesis.
There are some of us who have a family which seems to have diabetes passed down through their family like heart disease can run in the family? I know you have all answered these questions in your doctor’s office with the papers questioning you on your mother’s side and on your father’s side about diabetes, heart, cancer, etc.
The idiopathic side of Gastroparesis has been defined for some of us over the years whether it be, a surgery which cut the vagus nerve, or perhaps an infection or like me, it may be another route, like —> mitochondrial Malabsorption which as a result of the mitochondrial Malabsorption disease led to all of the issues I have Gastroparesis, Chronic Intestinal pseudo-Obstruction Syndrome, Colonic Inertia, Postural orthostatic tachycardia syndrome (POTS) (is a condition in which a change from lying to standing causes an abnormally large increase in heart rate) & Chronic Abdominal migraines.
There are other diseases/disorders or issues which can lead to or cause Gastroparesis and then the complications resulting from repetitive dehydration and malnutrition on your organs can lead to a failure to thrive and/or a loss of life linked to the stress on your organs.
Two years ago if someone had asked you or me if there was a part of the digestive tract hiding in plain sight? I would have said, “No!” You would have Read More »In 15 days Advocacy is Getting Louder!!!

God’s Hands

Tell me, how do you see the unseeable? The intangible thread which holds faith anchored securely to your inner most being?  Do you feel and see the hand of God? Now you simply must understand this is not a conversion conversation nor is it a… Read More »God’s Hands