How we found a way to turn up the volume on a lil cheer, laughter, & happiness! While brain storming about how we (meaning a lot of a community facing many #ChronicIllnesses) can use the lil Santa Elf to (who […]

And we say #HonorShip

I said, “Of course! I can in the true folly of pain (because my fanny fakes led me astray from the path I had diligently obligated myself to take every day in every way). But old dog new tricks seems […]


How did I know?  Your fingerprint told me so.  It said, “She/He is THE ONE!”  The best at all she/he does in all she/he does when moving through life as herself/himself, she/he wins- won!  You say, “Insufficient evidence?” I say, […]


Happy Thanksgiving! Because all of you are with all of me I want to share a memory. They say a picture is worth 1000 words or perhaps a  million I wouldn’t know but what I do you know, all of […]


Whether it is recipes, support, advocacy or just laughs with others in #GPNation or other #MotilityDisorders #Gastroparesis #IBS crohn’s or whatever autoimmune disorder which may limit your energy this #2016Holidays you can find a group on Facebook to help you […]

November 1999

How to use your thoughts of #Optimism #Positivity #Hope to keep #ChronicIllness #MotilityDisorders like #Gastroparesis #ChronicIntestinalPseudoObstruction #ColonInertia #MitochondrialMalabsorption from defining you or more importantly making you more miserable than you need to be. I began my infusion therapies during this […]

#IVoted & #CIP Sat🕯Down

#IVoted in the midst of an episode of telling myself “I think it’s getting better ” 5th day #CIPO sometimes shortened to #CIP for chronic intestinal pseudo-obstruction Syndrome – it’s an average thing in motility disorder world when you have […]


I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We”  not an “I” ~ this is a purposeful exercise. I am a patient/advocate and […]

#ISeeYou #Halloween2016

I see you. Not your invisibility, not your GP, I see you! I see the roads you have traveled. I see every bump every hiccup every little moment that is taking you from here to there. I see you!~~despite your […]

#RightCare = #Research

Twenty-Five years of Advocacy for patients with Gastroparesis  Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell  It […]