I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We” not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot
Twenty-Five years of Advocacy for patients with Gastroparesis Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell It is with sincere & deep… Read More »#RightCare = #Research
#RCAW #RightCare #RightCareActionWeek @LownInstitute No matter our income (which may get a buffer — briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare! When 1 is turned away, to… Read More »#RCAW #RightCare =
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
As I sit, pray, meditate about the best place to put my love & prayers . (You are all covered by the way) I come to the place I begin in Faith Hope, Optimism, Love, Trust & believing the burden is not mine. See, for… Read More »My Day
If you #TakeABite with a tummy or Digestive Tract which is “normal” ? It goes #swimmingly well! (Minus the occasional virus or upset tummy – but imagine having the flu {without a high fever or a few of the other symptoms} or food poisoning –… Read More »Did You Know?
What a miracle looks like, Is it the Red Sea? Or something you can see? I would propose it is something in front of you and me. There is a sweet book called When God Winks by Squire Rushnell. God winks are affirmation Miracles in my… Read More »See?
May I look upon you and know more yet see less May I stand with you & feel you without seeing you May I only need your physical description if there is a manhunt for you If and only then? Still it will not crush… Read More »May I
#Advocating – for ourselves & our community! Tomorrow is not promised- but blessed- when we give our best For this is not for ourselves but to save others we will never know even though our DNA – makes this path/journey unique? We are intimately acquainted… Read More »#Advocating – Tomorrow is not Promised
Would the #RedHatSociety mind us doing a #JumpOff for #GastroparesisAwareness #Green4GP #Greenified but do it #Fancy & incorporated #TakeABite4GP we see many sooo many T😖👒 Many with the #5MillionGPStrong wouldn’t it be fun to do the #GreenHatSociety for #CureGP ? & you can get that… Read More » #RedHatSociety w/ a #GP twist?
