#TheEvent #WeAreRare aka #Special We are #Millions upon #Millions in our many #Chronic communities. Our #Greenness #Muchness #Spoonie is a #Special #Advocacy #LivingLoud towards #Cures #SocialMedia #NonProfits, #Warriors, #SupportGroups, #MedicalTeams, #ChronicCommunities, all coming #together for our greater good/ #Awareness! #Green4GP to #CureGP #Green4Mito to #CureMito… Read More »#TheEvent Awareness Month Chronic Warriors aka Courageous Advocates & Their #Hashtags
http://goo.gl/Do2iui All things are possible. A thought is an idea waiting to become a reality upon meeting a knowledgeable optimistic person whose paradigms are not defined but beautifully blurred with positivity. dst 8/16/17 It is great connecting with others who know their thoughts and actions… Read More »#WarriorsDazzle
We are Fighting for A Change both for Awareness, for acceptance, education, empowerment, we are all advocates! Our advocacy may be on different levels but as soon as we enter the realm of being a Chronic Patient you are an advocate on some level, patient… Read More »Gastroparesis Awareness Month
We are ready to do #TheEvent!!! And as we do our #BeSeenBeingGreen4GP are there some chefs with shows who could do a little improvisation in honor of the late Robin Williams doing Mrs DoubtFire? Remember the #FlyByFruiting? Of course we do not wish anyone harmed… Read More »Chefs -Volunteers to do #FlyByFruitings4GP?
The Event #Green4GP to #CureGP We are 15 days from #TheEvent #Green4GP to #CureGP
There is a great moment about to occur in 15 days the green AWARENESS IN THE AIR which has already been ignited by the heroes in the #GPChronicSuperFabulosityWarriors . We began Gastroparesis/Motility Disorder Awareness Month/Week/Day on August 1,2017 WE HAVE 33 State Proclamations and counting – did you hear me right? 33 STATE PROCLAMATIONS and counting…
yes “We are smelling the roses and not feeling the thorns” ….Abraham Lincoln
When many of us began our journey– for myself? It was a diagnosis in 1999 but symptoms preceded this diagnosis for years/ plus it was a two-part diagnosis. I began with Idiopathic Motility Disorder/Part 2 brought AutoImmune and Mito by way of an explanation: Like many of you? I innately knew there were hereditary links to this puzzle which had been coming together for years.
Because this is Awareness Month…
I want to do a simplified version of this Gastroparesis Fighting For a Change and advocate for those who need words to explain. We, as a community, usually fall into two Categories – Diabetic Gastroparesis or Idiopathic Gastroparesis.
There are some of us who have a family which seems to have diabetes passed down through their family like heart disease can run in the family? I know you have all answered these questions in your doctor’s office with the papers questioning you on your mother’s side and on your father’s side about diabetes, heart, cancer, etc.
The idiopathic side of Gastroparesis has been defined for some of us over the years whether it be, a surgery which cut the vagus nerve, or perhaps an infection or like me, it may be another route, like —> mitochondrial Malabsorption which as a result of the mitochondrial Malabsorption disease led to all of the issues I have Gastroparesis, Chronic Intestinal pseudo-Obstruction Syndrome, Colonic Inertia, Postural orthostatic tachycardia syndrome (POTS) (is a condition in which a change from lying to standing causes an abnormally large increase in heart rate) & Chronic Abdominal migraines.
There are other diseases/disorders or issues which can lead to or cause Gastroparesis and then the complications resulting from repetitive dehydration and malnutrition on your organs can lead to a failure to thrive and/or a loss of life linked to the stress on your organs.
Two years ago if someone had asked you or me if there was a part of the digestive tract hiding in plain sight? I would have said, “No!” You would have Read More »In 15 days Advocacy is Getting Louder!!!