• #CureGP
  • #ISeeYou #Halloween2016

    I see you. Not your invisibility, not your GP, I see you! I see the roads you have traveled. I see every bump every hiccup every little moment that is taking you from here to there. I see you!~~despite your invisibility, despite the GP -despite the motility. I see you. Every moment of every day. […]

  • Advocacy
  • Advocacy a thought

    Advocacy at its core is focused on a mission of #CureGP but there is also a much larger goal interwoven into advocacy. While Tweeting, posting, blogging, tumbling, Instagraming, & creating campaigns alongside of projects which are never about anyone person but #GPNation. The larger advocacy goal is sharing the hard, hard, lesson of where your […]

  • Advocacy
  • #RightCare = #Research

    Twenty-Five years of Advocacy for patients with Gastroparesis  Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell  It is with sincere & deep appreciation the dedication displayed by the authors in this paper, […]

  • Advocacy
  • #RightCare #RCAW 2016

    Happy #CureGP www.curegp.com FB.curegp.com #HR2311 https://buildquorum.com/actions/1996 #TakeABite4GP http://fb.takeabite4gp.org http://www.takeabite4gp.org  #RightCare = ___ #RCAW. #ThankfulThursday 🕯💚🙏🏼💛🕯 Why #ThankfulThursday it follows #WarriorWednesday Every #NEGU #ButYouDontLookSick #Spoonie #InvisibleNoMore knows each hour is filled with thanks for an #OpportunityInTheCrisis even whilst dealing with the harsh waves of pain, fatigue,nausea, vomiting, constipation, diarrhea & more but this is the tip […]

  • Thoughts
  • A Dream 

    I see you then you are not there I return then you have gone  I see the boat geab the oars : row row row your boat gently gently down the stream  I seek to return to my dream Where you came to call  Is it wrong? Make me less? Weak or strong?  It is […]

  • Thoughts
  • Here 

    He gave me you yesterday  The twins of peace & patience  Then took everything away to grow a tree inside of me Then three gifts were Above & beyond priceless still I saw it was more than here & now.  We always receive More  when giving  Patience so hard Peace took her hand to make […]

  • Inspiration
  • See? 

    I found a page turning in the wind it said  My love is no burden upon your soul  I found my words floundering upon the waters as your love leaked upon the ground  We made no sound  Not one drop did it exceed this day I lost you  Yet I found myself knowing there are […]

  • Advocacy
  • Agree to Disagree

    Life is too short too precious  To not slow your roll & do otherwise.  I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my monkey not my circus. I said I am loving you with celebration! You are the […]

  • Advocacy
  • Storms #PeaceBoat 

    Storms whether physical, mental, financial, emotional, weather, spiritual, relationship, or a battle for your life in any of these aforementioned.  Do you know how to get into your #PeaceBoat? Now, if this is not your path, use this as a motivational tool. It still works. Visualize what I am telling you. Only Peace is allowed […]

  • Advocacy
  • #RCAW #RightCare =

    #RCAW #RightCare #RightCareActionWeek  @LownInstitute   No matter our income (which may get a buffer —  briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare!  When 1 is turned away, to slowly die in front of our eyes – it is […]