Thoughts

#ShareASpoonSaturday A Spoon of Thought to Share

#ShareASpoonSaturday A Spoon of Thought to Share Why our barometric pressure, weather fronts, motility, migraines, gut health, flora good & bad bacteria, microbiota balance, 1st & 2nd brain on our chronic journey matter. Here is a piece of a blog […]

Time is True

Time Is True We have now the truth of us the joy of our mystery lives inside each of us we beseech all to be true Not so much- roses are red, violets are blue Kind of poetry, not this. […]

Vagus Nerve

One is that when we are bored or tired, we just don’t breathe as deeply as we usually do. As this theory goes, our bodies take in less oxygen because our breathing has slowed. Therefore, yawning helps us bring more oxygen into the blood and move more carbon dioxide out of […]

Why I Love

Why I Love on the journey It’s a breath we take towards a day An evolved day an encompassing move we pray How we will speak when addressing every aspect about any possible situation it is this breath we breathe […]

#ChronicTime #ChronicClock

#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold […]

#ShareASpoonSaturday

Why say share a spoon when most of us on a chronic journey live with a deficit of spoons? The reason is the special chronic key many advocate chronic warriors have found along the way. The gift we share gives […]

Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the […]

Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION

A Port -A -Cath Placement Through Pocket Insertion A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life […]

Jan 11, #2020Motility

Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues […]

Thankful Thursday -Advocacy Options

https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic […]