• #CureGP
  • #AdvocacyDay 9/12/2017

    #HR1187 #FGIMD #IBS #GASTROPARESIS #CureGP with https://www.iffgd.org/advocate-for-digestive-health/taking-action-in-washington/capitol-hill-advocacy-day/virtual-advocacy-day-2017.html. <—— https://goo.gl/phf4do Did you know in WordPress your link cannot be too long? The way to resolve this is to use google shortener https://goo.gl/ it is also very helpful to use google shortener in Twitter while advocating on the #CureGP journey. The google shortener allows you to say […]

  • #CureGP
  • May We Find & Meet

    What speaks to my Soul might not speak to your Soul. I pray you find GRACE, OPTIMISM, SUPPORT, LOVE, HOPE, & the tiniest spark of ENCOURAGEMENT which may be needed to lift you in your moment of travail, anxiety, stress, doubt, pain, depression, chronic illnesses with or without answers… whatever adversity may be trying to […]

  • #CureGP
  • We Are The Cogs

    I’m Nobody! Who are you? Emily Dickinson, 1830 – 1886 I’m Nobody! Who are you? Are you – Nobody – too? Then there’s a pair of us! Don’t tell! they’d advertise – you know! How dreary – to be – Somebody! How public – like a Frog – To tell one’s name – the livelong June – To an admiring Bog! I adore poetry the ins and outs Which innately, elegantly […]

  • #CureGP
  • A Thought On Our Nature

    As I watch Biographies,documentaries, and movies with content about “our nature” throughout time immemorial with this issue called “racism, prejudice, misogyny, bigotry, hate, discrimination, etc.. and while I say “our” it is not all of “our” many, some, chosen have made their historic voices heard on many of these issues. Yet, every time I see […]

  • #CureGP
  • #ThankfulThursday 8/31/2017

    #ThankfulThursday on the #CureGP journey #Gastroparesis a #Mitochondrial #MotilityDisorder Awareness #Advocacy #TBT selfie testimony When we say #ButYouDontLookSick sometimes in our journey this phrase screams and sometimes it whispers… the first photo the symptoms were creeping but that young woman who was about to step into teaching, eyes on grad then doctorate program while doing […]

  • Thoughts
  • We Would Like A Vote…

    Your body just keeps surprising you with its Motility Disorders & AutoImmune Disorders Why Awareness is Paramount. About a year ago an allergic reaction shifted into an EpiPen required response due to an unexpected visit to the ER anaphylactic reaction to an unknown source. I am once again in an unknown area of a body […]

  • #CureGP
  • Motility & Co

    As I sit & contemplate how to best make an impact as an advocate for the #CureGP journey empower myself & others by being a #GPReporter in our larger #Chronic Community…. I see the trending topics on Twitter and then see a prompt to drop a letter in a song and create a new one. […]

  • #CureGP
  • Being Chronic

    Where is your best step in an uncertain world? Let’s just walk through this maize together. You either have been living with “incurable” since you were very young or are suddenly a collection of symptoms begin raining down upon you. Yes, this is an over simplification of our pathway into a myriad of chronic incurable […]

  • #CureGP
  • Soulful Grace +3

    My blog this #SoulfulSunday with advocacy of #MotilityDisorders is more of a flow chart of thoughts for what I want for our community I am using Dr Thomas Abell’s information from the University of Louisvile Ky & their Motilty Clinic as a blueprint guide to lead this discussion https://louisville.edu/medicine/departments/medicine/divisions/gimedicine/patient-care/motility-center As I was trying to look through all […]

  • #CureGP
  • Thank you, Warriors

    Prayer Meditate (Reservoir empty beep beep beep— enter to reset volume)  Some know – some empathize – some are our Warriors in arm in arm! Who know of which we speak,,, the best kind when the energy levels go to -5 (yes a negative 5) speaking – explaining is exhausting.  With love to all warriors […]