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Why I Love

  • Debbie 

Why I Love on the journey It’s a breath we take towards a day An evolved day an encompassing move we pray How we will speak when addressing every aspect about any possible situation it is this breath we breathe The slightest of a response… Read More »Why I Love

#ChronicTime #ChronicClock

  • Debbie 

#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold variables. There is no guilt,… Read More »#ChronicTime #ChronicClock

#ShareASpoonSaturday

  • Debbie 

Why say share a spoon when most of us on a chronic journey live with a deficit of spoons? The reason is the special chronic key many advocate chronic warriors have found along the way. The gift we share gives us back so much more… Read More »#ShareASpoonSaturday

Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

  • Debbie 

Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD

Jan 11, #2020Motility

  • Debbie 

Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues and their root causes &… Read More »Jan 11, #2020Motility

Thankful Thursday -Advocacy Options

  • Debbie 

https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic illnesses layer over each other… Read More »Thankful Thursday -Advocacy Options

#2020Motility Cures

  • Debbie 

#2020 #Motility #GP #Cures Speak your truth, chronicle your chronic journey, empowering yourself & others towards research & treatments regardless of our level of paralysis, symptoms, response to available treatments. We all deserve a quality of life & care while seeking cures for our chronic… Read More »#2020Motility Cures