We need warriors in each area of our state to reach out to their gastroenterologists in their area. I believe we have gastroenterologists who are able to handle our care, but we need to actually reach out, actively inquire, while explaining the needs of our… Read More »If We Build It -Dreams
A recipe for finding hope in a valley of unknown. This is not an overnight, snap your fingers, blink of an eye, recipe. Like the many layers, most of us live with, it is gradually built/earned overtime. Unknown in the chronic journey includes many moments… Read More »A Recipe for Hope
“Forgetting is just forgetting, except when it’s not. Then they call it something else.” The Mad Hatter When we see the miracles, wisdom, strength, Joy, Peace, Faith, Gentleness, Patience, Love, Kindness, Self-Control, Goodness of His Spirit meeting us in our journey…. we can see, hear,… Read More »#ShareASpoonSaturday with #MuchNess
Here is my Chronic Warrior Legend/ 🔑 key. It is different for every one of us – I am sure … so I am not using “We” When you do not hear anything from me… I do not have any energy. I am not mad… Read More »My Chronic Warrior Key / Legend
Is there a way to be Which doesn’t require a lot of energy? Can we move without physically exerting ourselves? Can we go to the beach, ride a wave without getting wet? Can we step onto a trail, hike it into the clouds Without ever… Read More »My Grind
I was Reading, Thinking, & Praying Leviticus 11 3/21/2018 Thinking, reading, praying, contemplating on the Lord’s explanation of what is clean and unclean It is with this in mind… as I do my Linzess in the background of #MotilityDigestiveDisease #PeaceBoat prayers ..I pray for all… Read More »Advocacy/Prayer
The United Mitochondrial Disease Foundation Does a great job of educating, empowering, and advocating for people about mitochondrial diseases. They also do a lot work, among others, in trying to help change the mitochondrial atmosphere for patients, supporters, and physicians. Many patients are in the… Read More »The United Mitochondrial Disease Foundation/IFFGD/Advocacy
In 2006 when my blog was set up by my Dear Steven son, www.iamokaynow.com I chose it from the perspective of speak it, believe it, receive it, and the journey I would be blogging about would not be about “me” but the message-service! I still… Read More »Advocacy thoughts
Happy #Green4GP #FactFriday on the #CureGP Journey #WeWillFindYou “We Will Find You” https://youtu.be/Jv8IqJm6q7w by Lecrae ft Tori Kelly lifting up all chronic community’s in pain sending love. The St Jude’s Children’s Research Hospital & #Cancer survivors or those #RIPAngels in both of our communities ->… Read More »We Will Find You
I keep a “Bible of Me” typed out – which I need to print out for a clean version. It is approximately 5 pages long. Why? I do this to keep a mental healthy me. A simple and lighter version of me, while I fight… Read More »Foundation of Me
