We gave you ugly and you see beauty, are you crazy? No, not Us! Your life is in shambles to an onlooker even some say “a prison.” Still you say a “sanctuary,?” Me thinks your marbles have escaped your Royal Crown, infused bag of “natural”… Read More »Dance vs Complain
I said, “Of course! I can in the true folly of pain (because my fanny fakes led me astray from the path I had diligently obligated myself to take every day in every way). But old dog new tricks seems to be literal except I… Read More »And we say #HonorShip
My Warrior voice says, thank you, Why? Because you taught me I have no control. What a strange thing to say, thank you to, right? But all of the loss taught me my minimal win was the most important & what truly mattered. When I… Read More »What I Was Taught.
Twenty-Five years of Advocacy for patients with Gastroparesis Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell It is with sincere & deep… Read More »#RightCare = #Research
#RCAW #RightCare #RightCareActionWeek @LownInstitute No matter our income (which may get a buffer — briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare! When 1 is turned away, to… Read More »#RCAW #RightCare =
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
Here are some links to our multi-level issues faced by – not all- but so many of us! #FGIMD #GP #MITO #EDS #POTS #MotilityDisorders #CIPO #SBBO #InvisibleIllness — this is just a starting point I will be adding to it as I find more resources. … Read More »#InvisibleNoMore
Do You see? My invisibility The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight The chronic intestinal pseudo-Obstruction Syndrome #CIPO DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?
If you #TakeABite with a tummy or Digestive Tract which is “normal” ? It goes #swimmingly well! (Minus the occasional virus or upset tummy – but imagine having the flu {without a high fever or a few of the other symptoms} or food poisoning –… Read More »Did You Know?
