Here is my Chronic Warrior Legend/ 🔑 key. It is different for every one of us – I am sure … so I am not using “We” When you do not hear anything from me… I do not have any energy. I am not mad… Read More »My Chronic Warrior Key / Legend
Why hats matter to me. What began as a cool comfort.. transitioned into comfort into a deeper meaning. I have always been fascinated by our fellow humans on this planet.. their villages, culture, history and humanity. We were meant to love, support, and lift each… Read More »
Is there a way to be Which doesn’t require a lot of energy? Can we move without physically exerting ourselves? Can we go to the beach, ride a wave without getting wet? Can we step onto a trail, hike it into the clouds Without ever… Read More »My Grind
IN NO WAY We must act, speak, feel, see, each moment as if our next breath were our neighbor’s last breath on earth. Their last breath on earth is our/the only child we are ever going to have nor are they ever going to ever… Read More »In No Way
THE SPOONIE DANCE NOT THE TANGO NOR THE FLAMINGO NOPE NOT THE SPOLIRIFOROUS SWING NO-SIREE- NOT THE TEXAS TWO-STEPPING SLIDE NEITHER OF THESE ARE WE MAMBOING We are doing the “Spoonie” it is made of a twirl. We must manage it carefully, A virtual spin… Read More »SPOONIE DANCE
While we are living our best lives, we sometimes have to do our best in hard situations. We were on a short fishing/photo/walking-trip. As we began our outing today, “Mr GreenFisherMan expedition”–> to find a bow fishing location. We took several photos to remember our… Read More »Sharing The #GPTruthofItAll
Sometimes we have to use our energy/spoons to focus on healing ourselves. In a migraine, it takes every single bit of energy I have to focus on my biofeedback training. I slow my breathing, then my heartbeat, heart rate, and hold it purposely to a… Read More »Focus
The United Mitochondrial Disease Foundation Does a great job of educating, empowering, and advocating for people about mitochondrial diseases. They also do a lot work, among others, in trying to help change the mitochondrial atmosphere for patients, supporters, and physicians. Many patients are in the… Read More »The United Mitochondrial Disease Foundation/IFFGD/Advocacy
In 2006 when my blog was set up by my Dear Steven son, www.iamokaynow.com I chose it from the perspective of speak it, believe it, receive it, and the journey I would be blogging about would not be about “me” but the message-service! I still… Read More »Advocacy thoughts
Happy #Green4GP #FactFriday on the #CureGP Journey #WeWillFindYou “We Will Find You” https://youtu.be/Jv8IqJm6q7w by Lecrae ft Tori Kelly lifting up all chronic community’s in pain sending love. The St Jude’s Children’s Research Hospital & #Cancer survivors or those #RIPAngels in both of our communities ->… Read More »We Will Find You
