Why I Love on the journey It’s a breath we take towards a day An evolved day an encompassing move we pray How we will speak when addressing every aspect about any possible situation it is this breath we breathe The slightest of a response… Read More »Why I Love
#ChronicTime #ChronicClock We move on our own unique time. Every#Spoonie #ChronicWarrior knows our time segments are not equal to real-time. A 48 hour segment of time may be = 2week segment. Every chronic journey/warrior is unique unto themselves with untold variables. There is no guilt,… Read More »#ChronicTime #ChronicClock
Why say share a spoon when most of us on a chronic journey live with a deficit of spoons? The reason is the special chronic key many advocate chronic warriors have found along the way. The gift we share gives us back so much more… Read More »#ShareASpoonSaturday
Medical nutrition equity act of 2019 https://www.congress.gov/bill/116th-congress/house-bill/2501/all-info #MedMito2019 #MitochondrialDisease http://www.umdf.org/ the nonprofit organization working as an advocate for and with those who have been impacted by mitochondrial disease along with their underlying chronic illnesses created by mito malfunctioning. https://www.iffgd.org/ the nonprofit organization working as an… Read More »Mitochondrial Disease #HR2501 w/#HR3396 #FGIMD
A Port -A -Cath Placement Through Pocket Insertion A Port -A -Cath placement through a pocket insertion, specifically the pectoral muscle, for use in IV therapy & antiemetic protocol. Its purpose is to help patients with a quality of life and care thrive vs failure… Read More »Journey 1/19/2020 PORT-A-CATH -POCKET INSERTION
Each moment of #2020Motility advocacy is chronicling our chronic journey with thoughtful clarity. 24/7/365 our combined truth empowers us all to research, treatments, quality of life and care while seeking cures for chronic communities. Regardless of our chronic motility issues and their root causes &… Read More »Jan 11, #2020Motility
https://www.merit.com/peripheral-intervention/access/renal-therapies-accessories/merit-hero-graft/healthcare-professionals/fistula-or-graft-salvage/ This site does a very good job of explaining the difference between the fistula graft and the HeRo graft. Thanks to the chronic community who required options for dialysis we have benefited from their vast experience. Whilst many chronic illnesses layer over each other… Read More »Thankful Thursday -Advocacy Options
#2020 #Motility #GP #Cures Speak your truth, chronicle your chronic journey, empowering yourself & others towards research & treatments regardless of our level of paralysis, symptoms, response to available treatments. We all deserve a quality of life & care while seeking cures for our chronic… Read More »#2020Motility Cures
Spinach or Kale Burgers 🍔 Sometimes we can only do liquids, a premier protein shake, (again not an endorsement just happens to be the one which checks my boxes on low energy days. When I do not have ready made Vitamix ingredients ready to blend)… Read More »What Does Your Tummy Feel Like Today?
Chronicling our 2019 into 2020 Hindsight’s 2020! Let’s welcome her by chronicling our chronic journey in full reflection. Chronicling our chronic journey of advocacy with truth empowering us forward. Our warriors of decades gather to usher the end of 2019. We open 2020 with chronic… Read More »Hindsight’s 2020 Let’s Welcome Her
