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advocacy

Advocacy a thought

Advocacy at its core is focused on a mission of #CureGP but there is also a much larger goal interwoven into advocacy. While Tweeting, posting, blogging, tumbling, Instagraming, & creating campaigns alongside of projects which are never about anyone person but #GPNation. The larger advocacy… Read More »Advocacy a thought

#RightCare = #Research

Twenty-Five years of Advocacy for patients with Gastroparesis  Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell  It is with sincere & deep… Read More »#RightCare = #Research

#RightCare #RCAW 2016

Happy #CureGP www.curegp.com FB.curegp.com #HR2311 https://buildquorum.com/actions/1996 #TakeABite4GP http://fb.takeabite4gp.org http://www.takeabite4gp.org  #RightCare = ___ #RCAW. #ThankfulThursday 🕯💚🙏🏼💛🕯 Why #ThankfulThursday it follows #WarriorWednesday Every #NEGU #ButYouDontLookSick #Spoonie #InvisibleNoMore knows each hour is filled with thanks for an #OpportunityInTheCrisis even whilst dealing with the harsh waves of pain, fatigue,nausea,… Read More »#RightCare #RCAW 2016

Agree to Disagree

Life is too short too precious  To not slow your roll & do otherwise.  I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my monkey not my circus. I… Read More »Agree to Disagree

I Find AWay

Ill find a way  Everyday I will see your good & the peace in you Because in me I hold peace, patience, optimism, & the bridge with Love I will find a way everyday to see unity because the alternative is too heavy  Therefore if… Read More »I Find AWay

Have you been on the other end?  Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss of  – pounds!”  Have been… Read More »

A Doctor Interview

Doctor are you worthy? We are priceless. What is your protocol for a multilevel situation (either you know or in the process of knowing) Dr are you able to reach out to specialists? Do you know a good palliative care team to support my various… Read More »A Doctor Interview

Not Every But I 

Not every little girl has parents who as members of the AmericanRose society breed cocker spaniels. Nor do they start optimist club’s, begin Girl Scouts or Boy Scouts in every town you move to. Nor did they become a part of a church family and… Read More »Not Every But I