Motility Monday What we raise for inspiration and motivation to journey forward Can become a spoken blessing for a quality of life and care while seeking cures for our chronic communities. The path we choose to breathe in and out in appreciation with gratitude for… Read More »Motility Monday 9/13/2021
#ShareASpoonSaturday We are patient and kind while sending our virtual spoons out to each other worldwide. Millions with incurable illnesses living with chronic illnesses. Lifting each other up in charity. Charity is never selfish, haughty or rude. We live each day in advocacy over our… Read More »Charity /Advocate Who We Are
A Red-lorded Amazon A pandemonium of parrots…. all seeing us with their Intent gaze… What do they see & perceive of us? Do we attribute our thoughts unto them? A hand fed baby will not know itself to be a bird, It thinks differently about… Read More »Pandemonium
When the new “Princess to be a Queen” is instructing some small young girls on how to get “in touch with their Princess” quality! She gives them all tiaras, instructs them on how to walk, wave, & be! While telling them they are princesses already?… Read More »The Princess Diaries2: Royal Engagement
Here is my Chronic Warrior Legend/ 🔑 key. It is different for every one of us – I am sure … so I am not using “We” When you do not hear anything from me… I do not have any energy. I am not mad… Read More »My Chronic Warrior Key / Legend
Is there a way to be Which doesn’t require a lot of energy? Can we move without physically exerting ourselves? Can we go to the beach, ride a wave without getting wet? Can we step onto a trail, hike it into the clouds Without ever… Read More »My Grind
Sometimes we have to use our energy/spoons to focus on healing ourselves. In a migraine, it takes every single bit of energy I have to focus on my biofeedback training. I slow my breathing, then my heartbeat, heart rate, and hold it purposely to a… Read More »Focus
The road to positive thinking is not like Dorothy on the road to Oz. No, it is entirely different. It is not “click our ruby-red heels three times” say the well-known words. The chronic warrior must be mindful, diligent, with practice, prayerful/meditatively/biofeedback/counseling/therapy a layering of… Read More »Gastroparesis Positive Thinking – Not Oz
#ThankfulThursday on the #CureGP journey #Gastroparesis a #Mitochondrial #MotilityDisorder Awareness #Advocacy #TBT selfie testimony When we say #ButYouDontLookSick sometimes in our journey this phrase screams and sometimes it whispers… the first photo the symptoms were creeping but that young woman who was about to step… Read More »#ThankfulThursday 8/31/2017
How to use your thoughts of #Optimism #Positivity #Hope to keep #ChronicIllness #MotilityDisorders like #Gastroparesis #ChronicIntestinalPseudoObstruction #ColonInertia #MitochondrialMalabsorption from defining you or more importantly making you more miserable than you need to be. I began my infusion therapies during this time of the year in… Read More »November 1999
