I am going to give an insight into a place I rarely write as personal entry. I do not do this because I am a “We” not an “I” ~ this is a purposeful exercise. I am a patient/advocate and what I try to do… Read More »#MotilityMoonShot
Life is too short too precious To not slow your roll & do otherwise. I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my monkey not my circus. I… Read More »Agree to Disagree
#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
Do You see? My invisibility The #GP #Gastroparesis My priceless ways because I am more than a discussion about veins or thighs aka weight The chronic intestinal pseudo-Obstruction Syndrome #CIPO DO YOU KNOW I quit talking about the way this goes years ago? Diapers or… Read More »Do You See?
Doctor are you worthy? We are priceless. What is your protocol for a multilevel situation (either you know or in the process of knowing) Dr are you able to reach out to specialists? Do you know a good palliative care team to support my various… Read More »A Doctor Interview
We are challenged often needing more energy than what we are blessed with on any given day so our spoons have to be evaluated and then sparsely given out during our day.Therefore perhaps #ThoughtfulThursday for #InvisibleIllness #SparselySpooned #SparselySpoons #Spoons #Spoonies why not throw a tongue… Read More »#ThoughtfulThursday #SparselySpoons #Spoonies
As I sit, pray, meditate about the best place to put my love & prayers . (You are all covered by the way) I come to the place I begin in Faith Hope, Optimism, Love, Trust & believing the burden is not mine. See, for… Read More »My Day
Not every little girl has parents who as members of the AmericanRose society breed cocker spaniels. Nor do they start optimist club’s, begin Girl Scouts or Boy Scouts in every town you move to. Nor did they become a part of a church family and… Read More »Not Every But I
Sharing a seed! I often reference how it takes optimism, Faith, & trusting in yourself to heal, succeed, achieve, or get anywhere at anytime. I know it works. I know it works, because I saw it in action. I was gathering a few books the… Read More »Peace Be Still (Not Ill)
There is a beauty to you It is never dim Even in the vomit, heaving, while leaning on the toilet rim There is life in you Even when it seems all is coming to an end Your body finds a spark of protein & just… Read More »#MyStatusIsYourStatus –
