I see you. Not your invisibility, not your GP, I see you! I see the roads you have traveled. I see every bump every hiccup every little moment that is taking you from here to there. I see you!~~despite your invisibility, despite the GP -despite… Read More »#ISeeYou #Halloween2016
Twenty-Five years of Advocacy for patients with Gastroparesis Twenty-five years of advocacy for patients with gastroparesis: support group therapy and patient reported outcome tool development Teresa Cutts, Sandra Holmes, Archana Kedar, Karen Beatty, Mohammad K. Mohammad and Thomas Abell It is with sincere & deep… Read More »#RightCare = #Research
Happy #CureGP www.curegp.com FB.curegp.com #HR2311 https://buildquorum.com/actions/1996 #TakeABite4GP http://fb.takeabite4gp.org http://www.takeabite4gp.org #RightCare = ___ #RCAW. #ThankfulThursday 🕯💚🙏🏼💛🕯 Why #ThankfulThursday it follows #WarriorWednesday Every #NEGU #ButYouDontLookSick #Spoonie #InvisibleNoMore knows each hour is filled with thanks for an #OpportunityInTheCrisis even whilst dealing with the harsh waves of pain, fatigue,nausea,… Read More »#RightCare #RCAW 2016
Storms whether physical, mental, financial, emotional, weather, spiritual, relationship, or a battle for your life in any of these aforementioned. Do you know how to get into your #PeaceBoat? Now, if this is not your path, use this as a motivational tool. It still works.… Read More »Storms #PeaceBoat
Life is too short too precious To not slow your roll & do otherwise. I did not say I was joining the circus. I truly & sincerely love (not my words & not clear where it came from!) not my monkey not my circus. I… Read More »Agree to Disagree
#RCAW #RightCare #RightCareActionWeek @LownInstitute No matter our income (which may get a buffer — briefly! No one can afford the costs for long !!! It is very very expensive to be #Starving4ACure #Dying4ACure >>>> a lack of #RightCare! When 1 is turned away, to… Read More »#RCAW #RightCare =
Outside my window is the peace joy of overflow I have been reflecting as of late outside from the inside Because of an abundance found in a place built I suppose with love & spiritual fortitude gifts untold Do you see outside your window and… Read More »Priceless-You Are
My invisibility is not a burden upon your society unless you ignore our pain There is nothing to say in this vast sea of brokenness but a celebration of service Eagles always acknowledge that which made them this way See buzzards & pigs ask questions… Read More »Be Visible
#IIWK16 There really is, truly, no other disease or incurable disease which forces you to prep for an outing like NPO orders for surgery or a procedure. It is a completely ordinary and well understood common practice for those of us with this digestive paralysis issue.… Read More »#IIWK16
Have you been on the other end? Of the “look”. “Well they obviously can get out of the car just fine!” The recipient of a “Questioning” glance saying , “Well, they are obviously able to eat! They have no loss of – pounds!” Have been… Read More »
